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Dear Deborah, I remember reading about your terrible experience with DBS, and I'm sorry to hear that now you feel it was not worth it. I hope in time you will at least be able to recover from the devastating effects of the surgery. Thanks for your response. Charlotte On Tue, 2 Jul 2002 09:46:09 -0400 Deborah Setzer <[log in to unmask]> writes: > Charlotte, > > You said: > > <<<I've heard of some people having a wonderful response to the DBS, > a lot of those who have posted here have had a mediocre benefit. Is > that > so, and have any of you gotten worse, as you have on one side, or > were > left with any damage, like speech problems?>>> > > > I won't go into the sordid details but here are the links to read > about my > outcome. I have yet to recover from the DBS surgery and am probably > 250% > worse than before I had it. We ordered my custom wheel chair with > head > support yesterday along with a hoyer lift and bed-side toilet. We > also > filled the Rx for glasses with prism's in them so that I will > hopefully once > again only see one of things. > > Admittedly, I am the 1/100 horrible outcome which most do not > experience but > you have to be psychologically prepared to handle it if you do > become that > next 1/100. > > I no longer think that my 16 days with the DBS was worth what I have > had to > go through. I have yet to recover and the original surgery was Dec. > 21, > 2001. > > http://www.charlotte.com/mld/charlotte/news/special_packages/deep_inside_ deborahs_brain/ > > http://community.webshots.com/user/tenacitywins > > Hugs, > Deborah aka Tenacity > > _________________________________________________________________ > Join the world’s largest e-mail service with MSN Hotmail. > http://www.hotmail.com > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn