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Hi Bob, I'm just a red neck mechanic who happens to have Parkinson's.... so I'll defer to the "pro's" to better answer your questions.... (my instant thoughts are that the International Parkinsons Conferences are organized more as a scientific sharing effort... as opposed to funding an epidemic communicable disease (AIDS) in third world underdeveloped nations) Read this: Children on the Brink 2002 http://www.unaids.org/barcelona/presskit/childrenonthebrink.html Check the links on the page... There is a real need to FUND the AIDS effort that overshadows anythingelse I can imagine. Now I'll jump down from this soapbox... Can any of the LIST members respond to Bob's questions? "is anybody leading a unifying effort or are we already unified? If not, how do we get there?" cheers ............. murray On 11 Jul 2002 at 8:38, Bob Allison wrote: > Murray, I recently wrote and asked if there was a nationwide or > worldwide org for PD. You replied that one group had a meeting here > and another there, etc. But my point is--is there one overriding > org that has called a conference at which everyone is invited. > Strength is in numbers. I dont want to take any $ from AIDS, but I > am really asking is--are we organized as efficiently as they are? > How many people attended their conference, how do they get the > funding that they get, etc. etc. This is improvemnet by > benchmarking! I am new to this community so I can ask some stupid > questions. Do we have an efficient org to get dollars, effect > research at NIH, get publicity, effect votes, etc. Or do we have > many organizations stepping on each others toes? I want to read in > the local paper about the worldwide Parkinsons Conference and who > spoke and which congresspeople were there. This will show that we > are doing well in the politics of med research. Until then, I will > be frustrated. If we have a million voices, lets shout in unison, > not from many different camps. > > So, is anybody leading a unifying effort or are we already unified? > If not, how do we get there? Bob ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn