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Connie, Could't be said better. Emily ----- Original Message ----- From: "Connie De Wolfe" <[log in to unmask]> To: <[log in to unmask]> Sent: Friday, July 12, 2002 11:43 AM Subject: Re: News & Views to July 10, 2002 > If you read Michael J. Fox's autobiography, he states that after he > founded the Michael J. Fox Foundation, he tried to work with other > Parkinson's organizations. However, he gave up in the end because every > group wanted to do its own thing in its own way. Being at odds with one > another sort of defeats the purpose of try to find a cure. > > Connie > > >Date: Thu, 11 Jul 2002 08:38:40 -0400 > >From: Bob Allison <[log in to unmask]> > >Subject: Re: News & Views to July 10, 2002 > >MIME-Version: 1.0 > >Content-Type: text/plain; charset="iso-8859-1" > >Content-Transfer-Encoding: 7bit > > > >Murray, I recently wrote and asked if there was a nationwide or worldwide > >org for PD. You replied that one group had a meeting here and another > >there, etc. But my point is--is there one overriding org that has called > >a > >conference at which everyone is invited. Strength is in numbers. I dont > >want to take any $ from AIDS, but I am really asking is--are we organized > >as > >efficiently as they are? How many people attended their conference, how > >do > >they get the funding that they get, etc. etc. This is improvemnet by > >benchmarking! > >I am new to this community so I can ask some stupid questions. Do we have > >an efficient org to get dollars, effect research at NIH, get publicity, > >effect votes, etc. Or do we have many organizations stepping on each > >others > >toes? I want to read in the local paper about the worldwide Parkinsons > >Conference and who spoke and which congresspeople were there. This will > >show that we are doing well in the politics of med research. Until then, > >I > >will be frustrated. If we have a million voices, lets shout in unison, > >not > >from many different camps. > > > >So, is anybody leading a unifying effort or are we already unified? If > >not, > >how do we get there? > >Bob > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn