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If you read Michael J. Fox's autobiography, he states that after he founded the Michael J. Fox Foundation, he tried to work with other Parkinson's organizations. However, he gave up in the end because every group wanted to do its own thing in its own way. Being at odds with one another sort of defeats the purpose of try to find a cure. Connie >Date: Thu, 11 Jul 2002 08:38:40 -0400 >From: Bob Allison <[log in to unmask]> >Subject: Re: News & Views to July 10, 2002 >MIME-Version: 1.0 >Content-Type: text/plain; charset="iso-8859-1" >Content-Transfer-Encoding: 7bit > >Murray, I recently wrote and asked if there was a nationwide or worldwide >org for PD. You replied that one group had a meeting here and another >there, etc. But my point is--is there one overriding org that has called >a >conference at which everyone is invited. Strength is in numbers. I dont >want to take any $ from AIDS, but I am really asking is--are we organized >as >efficiently as they are? How many people attended their conference, how >do >they get the funding that they get, etc. etc. This is improvemnet by >benchmarking! >I am new to this community so I can ask some stupid questions. Do we have >an efficient org to get dollars, effect research at NIH, get publicity, >effect votes, etc. Or do we have many organizations stepping on each >others >toes? I want to read in the local paper about the worldwide Parkinsons >Conference and who spoke and which congresspeople were there. This will >show that we are doing well in the politics of med research. Until then, >I >will be frustrated. If we have a million voices, lets shout in unison, >not >from many different camps. > >So, is anybody leading a unifying effort or are we already unified? If >not, >how do we get there? >Bob ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn