Charlotte, I am talking to my mothers dr about requip, would you mind
telling me what is the lowest dosage to start out with? that way she can
get used to it hopefully. i doubt if she will be affected with diahreah, as
she has been severely constipated her entire life, so hopefully she wont
have too bad side affects. thanks paula
----- Original Message -----
From: "charlotte A mancuso" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, August 04, 2002 5:13 PM
Subject: More ideas--Fw: Re: ALTERNATE DIAGNOSIS? ANY IDEAS?
> I forgot to say--agonists are hard to get used to, but for me, they were
> well worth it--try again slowly and stick with it--it may take 2 or 3
> months. Side effects are a price you pay on the way to improvement,
> within reason. I was doubled up with cramps and diarrhia on Requip--I
> got over it, and wouldn't give up my Requip for anything! Also, when I
> got worse, I dropped Comtan--(Tasmar alternative, but not stored in
> liver--no blood tests); Dr. had me go back on Comtan, increased my
> Sinemet--(we were sparing simemet as much as possible so as not to
> trigger dyskinesia)--and I improved, though I wasn't as advanced as you
> describe your friend. However, it seems to me that lots of mainstream
> meds are not being tried--also he may be experiencing dystonia--the
> turned in hand and curled fingers?--try Baclofen--it's an MS drug that
> works for PWPs with dystonia. I use it successfully for hand and foot
> turning in and my toes going upward. PWPs do get dystonia, and it worked
> for me.
>
> Good luck,
>
> Charlotte Mancuso
>
> --------- Forwarded message ----------
> From: charlotte A mancuso <[log in to unmask]>
> To: [log in to unmask]
> Date: Sun, 4 Aug 2002 14:22:38 -0700
> Subject: Re: ALTERNATE DIAGNOSIS? ANY IDEAS?
> Message-ID: <[log in to unmask]>
>
> Is he taking large quantities of vitamins containing vitamin A or
> drinking lots of carrot juice? I believe too much and it will turn your
> skin yellow/orange--one literally starts to look like a carrot. A friend
> of mine did this many years ago. And I think vitamin A is stored in the
> liver.
>
> My memory of this is a little sketchy. Katherine Holden: can you weigh
> in on this in case my memory is failing me?
>
> Charlotte Mancuso
>
> On Sun, 4 Aug 2002 13:03:19 -0400 WILL JOHNSTON <[log in to unmask]>
> writes:
> > There is a young onset PD man in our support group who has had PD for
> > about
> > 10 years for sure, probably longer (current age 51).
> >
> > He has been taking Sinemet for years, and it has usually been
> > effective. He
> > has taken various agonists in past years, and they produced
> > undesired
> > side-effects. He had a palidotomy about 5 years ago which produced
> > favorable
> > results for about 3 1/2 years.
> >
> > About a year ago he took a considerable turn for the worse:
> >
> > He was also taking Tasmar [and getting liver function tests from
> > time to
> > time which were uniformly negative for problems] when,
> > over a period of about two weeks he gradually lost his ability to
> > stand
> > alone or walk. The fingers on one hand curled in, and the fingers
> > will not
> > extend out even with considerable force. The changes seemed much
> > too fast
> > for PD, but much too slow for a stroke. He is still mentally sharp.
> > When I
> > helped take him for an MRI [no problems seen in MRI pictures], his
> > arms and
> > hands were yellow. [For those who can remember when oleomargerine
> > was white
> > and came with a yellow-orange dye packet: The color was just like
> > the dye
> > when the margerine was partly pale yellow and partly orangey - the
> > orangey
> > color.] I immediately thought juandice, but his eyes were very clear
> > and the
> > eyeballs were very white. {This symptom disappeared in a very few
> > days.}.
> >
> > There are deer and ticks in his yard. I thought Lyme disease. Lyme
> > disease
> > is seen frequently in our area. I understand he was tested for Lyme
> > and
> > test was negative. The MD's are stumped? Any ideas?
> >
> > Will J.
> >
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