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From: [log in to unmask]
Full-name: RayilynLee
Message-ID: <[log in to unmask]>
Date: Tue, 20 Aug 2002 19:58:57 EDT
Subject: Fwd: PET SCAN Scandal
To: [log in to unmask]
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Joan, this went to National Enquirer, People magazine, and The New York Times
(I guessed at their email cause I couldn't get in on that site you gave me.
Anyone else you want me to send it to? Rayilyn
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<HTML><FONT FACE=arial,helvetica><FONT SIZE=2>Joan, this went to National Enquirer, People magazine, and The New York Times (I guessed at their email cause I couldn't get in on that site you gave me. Anyone else you want me to send it to? Rayilyn</FONT></HTML>
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From: [log in to unmask]
Full-name: RayilynLee
Message-ID: <[log in to unmask]>
Date: Tue, 20 Aug 2002 19:55:44 EDT
Subject: PET SCAN Scandal
To: [log in to unmask]
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Dear Editor:
Right now a life and death drama is going on for 40 yr old Deborah Setzer in=
=20
Room 474 of North Shore University Hospital, Manhasset, NY. 1-516-684-5812 i=
s=20
her phone number there.
This month she had a F-DOPA PET scan which showed she does not have=20
Parkinsons. =A0She had a FDG-DOPA (glucose) scan which showed she doesn't ha=
ve=20
MSA (multiple systems atrophy). =A0We Parkies have been told by the medical=20
profession that there is no test for Parkinson's that show how much dopamine=
=20
our brains have.
She will have surgery tomorrow for Chiari, something none of us Parkies had=20
ever heard of. =A0=A0
Because these scans were not done, Deborah had unnecessary DBS brain surgery=
=20
for PD in Feb 2002 - developed a staph infectiion, was allergic to meds, had=
=20
last rites of church, but somehow survived.
While going through her medical records take with her to NY from SC for the=20
Chiari surgery she discovered an April 2002 CA-125 reading for ovarian cance=
r=20
of 48. =A0Normal is 1-35.
Will Deborah survive tomorrow's surgery? =A0Will she be helped? =A0Does she=20=
have=20
ovarian cancer?
Her friends on the Parkinson's List have tried unsuccessfully to raise money=
=20
to help meet her mounting expenses.
Please help us publicize her struggle and the news there has beenn a PET sca=
n=20
for PD for 15 yrs. =A0I'm having mine Sept 9 at UCLA. =A0Corrrect diagnosis=20=
is=20
essential for treatment, and we Parkies have not had that luxury. =A0Treatme=
nt=20
is a crapshoot, because like cancer, Parkinson's is not one disease, but man=
y.
[log in to unmask],=20
Rayilyn Lee Brown, PD prisoner and ovarian cancer survivor.
1-909-696-0908
40697 Corte Albara
Murrieta, CA =A092562-5513
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<HTML><FONT FACE=3Darial,helvetica><FONT SIZE=3D2>Dear Editor:
<BR>
<BR>Right now a life and death drama is going on for 40 yr old Deborah Setze=
r in Room 474 of North Shore University Hospital, Manhasset, NY. 1-516-684-5=
812 is her phone number there.
<BR>
<BR>This month she had a F-DOPA PET scan which showed she does not have Park=
insons. =A0She had a FDG-DOPA (glucose) scan which showed she doesn't have M=
SA (multiple systems atrophy). =A0We Parkies have been told by the medical p=
rofession that there is no test for Parkinson's that show how much dopamine=20=
our brains have.
<BR>
<BR>She will have surgery tomorrow for Chiari, something none of us Parkies=20=
had ever heard of. =A0=A0
<BR>
<BR>Because these scans were not done, Deborah had unnecessary DBS brain sur=
gery for PD in Feb 2002 - developed a staph infectiion, was allergic to meds=
, had last rites of church, but somehow survived.
<BR>
<BR>While going through her medical records take with her to NY from SC for=20=
the Chiari surgery she discovered an April 2002 CA-125 reading for ovarian c=
ancer of 48. =A0Normal is 1-35.
<BR>
<BR>Will Deborah survive tomorrow's surgery? =A0Will she be helped? =A0Does=20=
she have ovarian cancer?
<BR>
<BR>Her friends on the Parkinson's List have tried unsuccessfully to raise m=
oney to help meet her mounting expenses.
<BR>
<BR>Please help us publicize her struggle and the news there has beenn a PET=
scan for PD for 15 yrs. =A0I'm having mine Sept 9 at UCLA. =A0Corrrect diag=
nosis is essential for treatment, and we Parkies have not had that luxury.=20=
=A0Treatment is a crapshoot, because like cancer, Parkinson's is not one dis=
ease, but many.
<BR>
<BR>[log in to unmask],=20
<BR>Rayilyn Lee Brown, PD prisoner and ovarian cancer survivor.
<BR>1-909-696-0908
<BR>40697 Corte Albara
<BR>Murrieta, CA =A092562-5513</FONT></HTML>
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