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Hello Deborah,
I was a CG with my Mom and Brother for my Dad who had parkinson's Plus. We
were with him through some terrible tests and terrible days.
But I felt it then and feel it now, each day was beautiful in its own crazy
way. Hang in there. You are precious.

Take care
Lavanya
----- Original Message -----
From: "Deborah Setzer" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Monday, August 19, 2002 6:40 PM
Subject: Progress Report #1


> I can't begin to thank everyone for your generous support, encouragement
and
> prayers.  We made it here to Long Island last night.  My head hurt so bad
I
> was in tears.  We went to the Ronald McDonald house where we were told to
go
> and they told us that we would be staying at Variety House instead.
Variety
> House is a part of children's charities and is across the street from
North
> Shore Jewish Hospital.
>
> Robert is already over at the doctors office.  He is showing them my
medical
> reports on the positive CA 125.  If it weren't for the fact that I lost
both
> my aunt and grandmother to ovarian cancer, and the fact that I have been
so
> very careful to have the test every year, this could easily be shucked off
> by me as a false positive result.
>
> But, since in my own infectious disease doctors words, I do have the
> propensity to BE the odds....... well, you can guess from here.
>
> Robert also promised me that he would work out something with the doctors
> this morning about putting in a central line or a picc line since my veins
> are completely shot from the other 4 hospitalizations and that is one of
my
> greatest phobia's at this time... being repeatedly tortured by needles.
>
> I still don't have any more knowledge about why I have been rushed in so
> quickly.  Edith gave me great answers on the phone to that one yesterday
and
> I need to extend her the biggest hug.
>
> Both of us would also like to thank Kathleen, Joan H., Rayilyn and Edith
for
> the supportive phone calls.  It really has helped me tremendously.  The
> notes that others of you have sent are all saved in a file so that when I
am
> up to it, in the hospital, I can read them over and over.
>
> Well, that's is for now.  I just wanted to check in and let you know we
made
> it safely and my tests begin, 32 tests to be exact, in just a few hours.
>
> Hugs and Warm Fuzzies,
> Deborah aka Tenacity
> But for the Grace of God, Go I!
>
>
>
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