Hi everyone...this message maybe a duplicate and some of it is old news of
what you received yesterday., e.g. Deborah has been moved to another
hospital..another email will come when we have verification of the time of
surgery....
The reason for resending this is that I received a warning message stating
that some of my email did not go through....so I'm reposting messages with
the help of Hans.......Joan Hartman
----- Original Message >
Sent: Monday, August 19, 2002 8:51 AM
Subject: Deborah Setzer
Hello...There's several of us that have been in contact in various ways
with either Deborah and/or Robert (the latest being Edith on Sunday) .....
I've been designated the one to forward the information to you for all of
us for the next few weeks....some of what I wrote last night is now a
duplicate because you've heard from The Lady of the Hour herself this
morning..and don't you just love the way she signs off ...... Hugs and
Warm Fuzzies, Deborah aka Tenacity, But for the Grace of God, Go I!
But please bear with me as there's more you might like to know.
Today, Monday, we know is that they meet with all the doctors and
other medical staff and Deborah begins a set of 32 tests that must be
taken before surgery which, at this point in time is scheduled for is
Wednesday at 10:30 am EST. (I will confirm the time and send a
reminder on Tuesday night).
Usually, Deborah has had time to research her tests and to understand
enough of what was going to happen to her so a lot of the fear was
removed..... This time, everything has moved so quickly, there was no
time for research which makes it all the more unnerving for her. She
no longer has any veins showing and the pain that results is unbearable.
And, now, there is the additional factor of Ovarian Cancer that has to be
dealt with. And, yet, none of these 32 tests mentioned above include
tests for the ovarian cancer which will also be done.
Deborah and Robert just "found out" about the Ovarian Cancer this past
Friday when Robert went and picked up Deborah's records from their local
doctor to take them to NY and she read her own files....it showed earlier
notations regarding Chiari and also for Ovarian Cancer which is in her
family....the doctors failed to retest or to notify her or to follow up on
these two things...and nobody caught it.....and now she's paying the price.
Even though it's Deborah who has been through test after test, poked and
prodded by doctor after doctor, until there's nothing left to poke,
diagnosed and mis-diagnosed, given the good news only to hear, "no,
sorry, we made a mistake, it's bad news" over and over again, Robert's
been there with her.....and we all know it's just as bad for the spouse
watching the loved one go through this.....they are a team and they suffer
together as one.... therefore, we all need to provide all the support they
both need....the support that we, ourselves, would like if we were in their
shoes...... and in any way we can.......If you would like to, you can do any
one or all of the following to show your support for them...........you can
write them a word of encouragement through this PD venue we have,
..............you can go get a get well card and while you're writing the
card out, think about enclosing a check in the card that you send or you
can make a donation to Tom Berdine's YOP site as he has a special
fund set up for Deborah...or come up with a supportive idea yourself....
just as long as we are all there to support them. Contact information is
listed below in case you want to do any of these things.
They have spent all their savings, have tremedous medical bills and
money would be very helpful. When they were in NY last time for the
consultation, it was $24/hour to hook up online to let us PDers and the
folks back home know Deborah's status. Kathleen is currently checking
out cheaper ways to do this.
I am putting my email address down so in case you would like to contact me
directly. We will keep you posted as we get information as to what's
happening...
Joan Hartman [log in to unmask]
Robert Setzer
[log in to unmask]
Deborah Setzer
[log in to unmask]
Tom Berdine YOP site with special fund for Deborah
www.youngparkinsons.com/
Deborah has been moved to another HOSPITAL ....IT IS
North Shore University Hospital, Room 474
300 Community Drive
Manhasset, NY 11030
516-684-5812
This was the original hospital
Long Island Jewish Medical Center
270-05 76th Avenue
New Hyde Park, NY 11040
718-470-7000
----------------------------------------------------------------------
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