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Date sent: Sat, 17 Aug 2002 13:54:05 EDT Send reply to: Parkinson's Information Exchange Network <[log in to unmask]> From: Rayilyn Brown <[log in to unmask]> Subject: Deborah/ovarian cancer To: [log in to unmask] > Dear List, > > Deborah Setzer told Kathleen and me yesterday that she found a 43 or > 48 (can't remember which) CA-125 reading in April of this year for > ovarian cancer in her medical records. 1-35 is normal. > > I told her sometimes those CA-125's give false readings....not to > offer false hope, but they won't really know unless they open her > up. You can have a normal CA-125 and still have ovarian cancer (my > own experience), but this is DEFINITELY BAD NEWS on top of the pending > brain surgery for Chiari. > > We understand that the reading is 85 -90 percent accurate and that > means there is a 10-15 percent chance she is OK. But the thought of > yet another surgery...and then chemo is too much to bear. Just the > thought it all has floored me. > > Needless to say Deborah and Robert need all the support they can get > from all of us. Rayilyn I may have missed this thread because I have been "nomail" on vacation. Why is surgery being done for Chiari? What are the symptoms that justify the surgery. There are some people who are operating on Chiari malformations without good indications (many of these previously undiagnosed and asymptomatic malformations are picked up as "incidental findings" on scans). As to the CA-125 issue, I think that it needs to be taken very seriously. Ovarian cancer has few early symptoms and, if not diagnosed very early (Stage I or II), it is highly fatal. I lost my first wife to ovarian cancer. Best, Bob ********************************************** Robert A. Fink, M. D., F.A.C.S., P. C. 2500 Milvia Street Suite 222 Berkeley, California 94704-2636 Telephone: 510-849-2555 FAX: 510-849-2557 WWW: http://www.rafink.com/ mailto:[log in to unmask] "Ex Tristitia Virtus" ********************************************* ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn