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Pat, i dont understand what is going on either, but I am only on this list because my mother has PD and this seemed the best source of information for me to go with. From all the info that Deborah gave, I am now trying to get my mother the PET Scan because I am still not absolutely certain of her diagnosis, and I am not sure the doctors are that convinced either, so her postings really gave me another avenue to pursue and I am thankful for that. I personally thought the posting by John showed little empathy and I was surprised. paula ----- Original Message ----- From: "Pat Higgo" <[log in to unmask]> To: <[log in to unmask]> Sent: Monday, August 26, 2002 7:32 PM Subject: Re: Deborah and John C. > Hey Y'all, > I'm confused. Has Deborah actually been removed from the list? I thought > the comments made by John were simply about the topic of Chiari, not about > Deborah being blacklisted. Some things said were unfortunately somewhat > less than sympathetic, we all have foot in mouth days though. If you have > to have PD to be on this list...........I don't belong. I'm simply somebody > who has worked with several people with PD, and similar symptoms. Can > someone make clear what has actually taken place before it ends up > spiralling out of control? > Peace > Pat > ----- Original Message ----- > From: "Connie" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Monday, August 26, 2002 8:11 PM > Subject: Re: Deborah and John C. > > > I am truly amazed that Deborah was removed from this list and that her > circumstances were equated > to a "soap opera." It is hard enough that many of the people around us don't > understand what it's > like to have PD or one of the look-alike syndromes. On Friday, a number of > local teachers ganged > up on a their arbitrator (the teachers are in the midst of contract > negotiations); they accused > this man of being a coward when he left at the end of the day because he was > shaking. He tried to > tell them that he had PD, but it took until the next day before they found > out that the man had PD > and that they finally apologized to him for their behaviour. These are > teachers with Bachelors and > Masters degrees, people who are supposed to helping to keep bullying out of > the classroom. To see > this similar type of pettiness on this list makes me very sad. Isn't this > supposed to be a place > where we can receive some mutual support and educate one another? IMO, > Deborah should be returned > to active status on the list (if she is so inclined) and she should receive > an apology for what > was said about her. > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn