Hi! Perry and Charlotte:
Count me in too.
I think we should start sharing our ideas on how to proceed without
wasting too much time.
Raj
[log in to unmask]
*******************
----- Original Message -----
From: "Charlotte Mancuso" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Thursday, August 22, 2002 11:21 PM
Subject: Re: Cure Parkinson's Project
> Hi Perry,
>
> I've been thinking about this tremendous idea of yours, and I'd like to
> share my thoughts with you. But first, I'd like to call you and listen
> to your ideas and what you are envisioning. Your words sparked some
> simmering ideas I have been having about a new approach at pushing for a
> cure.
>
> If you're willing, I'd like to hear you present your vision of such a
> project: how you see it organized, funded--private and public funds, how
> would one recruit top scientists, convince private companies to work
> together, it's feasibility, and so on. I'd like to be part of the
> brainstorming on this--I'm developing a vision of organization in support
> of the project.
>
> Let me know if you want to discuss this with me, and when.
>
> Thanks,
>
> Charlotte Mancuso
>
>
>
> On True, 6 Aug 2002 10:39:47 -0400 Perry Cohen <[log in to unmask]> writes:
> > An idea whose time has come? A well organized, focused assault on PD.
> > If
> > the entire PD world got behind such an effort, could it work? What do
> > you think?
> >
> > Foundations focus on the results above their own organizations and
> > collaborate to organize a focused effort on the scale of the
> > Manhattan
> > Project; Scientists develop a plan to fill gaps in knowledge needed
> > for
> > curative therapies; NIH pays out the $135m shortfall in the PD
> > research
> > agenda; Drug companies make major contributions and share
> > discoveries.
> >
> > Perry Cohen
> >
> >
> > Cure Parkinson's Project
> >
> > http://www.givingback.org/GIVINGBACK/
> >
> > Giving Back Fund (GBF) Collaborates with Leaders in Parkinson's
> > Research
> > to Fund Cure
> >
> > What began as a conversation over lunch could end up curing one of
> > the
> > most debilitating diseases of our time. The conversation took place
> > between GBF founder and President Marc Pollick, sports marketing
> > pioneer
> > Jim Warsaw (a Parkinson's patient, GBF Board Member, and leader in
> > the
> > fight for a cure) and Dr. Jim Fallon, Parkinson's researcher at the
> > University of California, Irvine. What if, the three surmised, the
> > leading scientists and Parkinson's researchers chose to ignore
> > politics
> > as usual and the competitive nature of major research and tackled the
> > disease as a team, openly sharing their theories and scientific
> > findings? Could a cure be found faster than the current estimates of
> > 10
> > to 15 years? Thus, was formed the idea for the Cure Parkinson's
> > Project,
> > modeled after the Manhattan Project of the 1940's in which leading
> > scientists collaborated to discover the atomic bomb.
> >
> > Already the project is attracting the attention of leaders in the
> > scientific and medical communities. The first milestone for the
> > Project
> > will be a conference that will bring together the major stakeholders
> > in
> > the discussion-scientists, Parkinson's foundations, well-known
> > figures
> > who suffer from Parkinson's Disease and potential funders. The
> > conference will address ways in which the Parkinson's community can
> > overcome obstacles such as the sharing of intellectual property
> > rights
> > so that we can move forward together to find a cure. A cure for
> > Parkinson's could potentially benefit those who suffer from related
> > neurodegenerative disorders including Alzheimer's Disease, Multiple
> > Sclerosis, ALS, and some spinal chord injuries as well.
> >
> > When asked about the project Dr. Fallon stated "The creation of a
> > large
> > scale consortium to bring the top Parkinson's research teams together
> > under one roof for 3-4 years is an extraordinarily unique and
> > powerful
> > model to find a cure for PD once and for all. Breaking down the
> > barriers
> > between multidisciplinary basic and clinical research teams in a
> > setting
> > of instant synergy should dramatically shorten the time and cost of
> > finding a cure. This is an ambitious and exciting project that
> > approaches the scope of the Manhattan project. Most patients and
> > their
> > physicians do not want to wait 15 years for a cure nor do they want
> > to
> > hear an empty promise of a cure in 5 years. It takes this scope of a
> > concerted effort of the best researchers from around the world to
> > realistically deliver a cure in such a short time."
> >
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