 |
 |
http://www.geocities.com/doncyberdadmckinley/ ----- Original Message ----- From: "vmehra" <[log in to unmask]> To: <[log in to unmask]> Sent: Sunday, August 25, 2002 10:48 PM Subject: Wondering > Hello All, > This is a long mail. But I am covering two points related to the awareness > about PD. > U KNOUW THIS GGOOD IDEA BBUT U KNOUGH HOW DUMB MY KEAYBOARD IS. I HAVE TRIED IF SOME DAY I CAN GET TYPE FO ME I WILL TELL WHAT I HAVE BEEN THROUGH PASTT 33 YEARS & WHAT HAVE DONE U ALL DONT SEE HOW MANY TIMES I HIT THE SAME LETTER & HAVE TO GO BACK & DELETE 1 SO ANY TIME I CAN HELP SEND 20 YEAR OLD BLOND I WILL TELL HER. I.Y.Q. > Firstly what I have noticed here is that all of us, when we joined this > list, knew so little about the actual intricacies of PD. I didnt know too > much about toe curling, someone the other day asked about swallowing and > saliva, someone about food and nutrition, movement problems etc. > I am not talking about all these issues being discussed in general, I mean > specifically new members who ask about this. > I guess a lot of people worldwide have PD, and enough people on this list to > document some very real and known symptoms and conditions which should be > distributed compulsory to each new member to have and go through. > A sort of like a small FAQ's where some of our top discussions and questions > can be written and should be given to everybody who is diagnosed. > I think it will also make us know how much we all really know about PD too. > > Secondly, somehow it seems to me that somewhere we are failing to educate > people about what Parkinson's is. > You mention Cancer, paralysis, etc, on the road and people have a good > enough idea. But most people draw a blank even now when PD is concerned. > I think we need to do more basic spreading of knowledge about PD. That is > also important coz often on the streets and markets I have seen people > giving strange looks to someone who shakes or takes time talking etc. > Somewhere the message that We are okay, its okay to talk to us, we > understand everything, we are not stupid, even if we talk slowly or in a > slurred way.......all this must reach across fast to people. > > Even in my family, I remember some relatives while talking to my Dad who had > PD......they would talk many decibles louder. Made me wonder what about PD > means that the person is automatically deaf. > > Just wondering whether apart from having this great forum here, we should > also spread more knowledge about the real desease. > > Take care > Lavanya > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn