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Thanks Pat, Larry ----- Original Message ----- From: "Pat Higgo" <[log in to unmask]> To: <[log in to unmask]> Sent: Saturday, September 07, 2002 11:00 PM Subject: Re: Question > Hey Larry, > My name is Pat Higgo and I'm a Registered Massage Therapist who does a lot > of lurking on PIENO. I pulled out my text books from college, I think you > may be refering to Amyloidosis. "There are 2 major forms of this disease in > which a waxy, starchlike glycoprotein (Amyloid) accumulates in tissues and > organs impairing their function." I'm quoting this from a medical > dictionary so if none of it makes sense, please let me know and i'll do my > best to explain it to you. "Primary Amyloidosis usually occurs with > multiple myeloma. Patient with Secondary Amyloidosis usually suffer from > another chronic infectious or inflammatory disease, such as tuberculosis, > osteomyelitis, rheumatoid arthritis or Crohn's disease. The cause of both > types of Amyloidosis is unknown. Almost all organs are affected, most often > the heart, lungs, tongue and intestines in Primary Amyloidosis and the > kidneys, liver and spleen in the secondary type. Elderly patients tend to > experience cardiac effects of the disease. Diagnosis is made through biopsy > of the suspected organ. There is no known cure for Amyloidosis, and > treatment in the secondary type is aimed at alleviating the underlying > chronic disease. Patients with renal Amyloidosis are frequently candidates > for kidney dialysis and transplantation." (Mosby's Medical, nursing & > Allied Health Dictionary; 1994) As to the state of your brother's tendons, > the best advice I can give you is to find a massage therapist who is > experienced working with mobility issues. I'm not going to tell you that > the doctor is wrong because I don't know that he is. There are things that > a massage therapist can do to soften the ligaments and to help maintain what > range of motion your brother still has. It's possible that your brother may > not walk again, I don't want to give you false hope. I'm thinking that it > would wise to give it a try anyways, even if only to know that every > possible angle was explored. I wish you the best of luck. If there is > anything I can help you with, please let me know. > Peace > Pat > ----- Original Message ----- > From: "Larry Wilson" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Saturday, September 07, 2002 9:50 PM > Subject: Question > > > My (PD) brother went into the hospital with aspiration pneumonia and has > been put back into the nursing home after taking about 2 weeks in the > hospital for recuperation. He has a feeding tube (PEG) in his stomach. It > was suspected the nursing home had been letting him lay down during feeding. > He seems to be getting well now. John is about 1000 miles from me. > > When I left him in April he was walking with assistance and we had fun > walking around the nursing home. Since that time he has not walked and when > he went to see a PD DR recently the DR said he may not be able to walk > again because his ligaments had formed permanently and could not stretch > now. (Sorry about the vagueness but I can't recall what his wife said > exactly when she took him to the DR). > > While he was in the hospital the DR found a rare blood disease that affects > the heart. The disease is called Amaloid (I hope that is the correct > spelling). I tried to look this up but could not find much on it. Does > anybody know about this disease and how it may affect PD patients?? > > Thank you, > > Larry Wilson > Georgia > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn