Hi! Margaret:
To take or not to take drugs isa very individual decision, dependng on
the severity of the disease and the rate at which it progresses, which often
varies between individuals.
To cut the long story short, I am having PD symptoms for the past five
years, but on hindsight, some symptoms were present about 35 years ago, I
never realized.
I am taking oral Glutathione, Co Q10, Phosphatidylserine,
N-acetylcysteine, Vit E, B6, B12, folic acid, and multivitamins. In
addition, I take green tea + darker honey with a pinch of turmeric, a cup of
strong coffee, spinach, and blue berries. Also, I take one glass of tomato
juice, blue berry juice and orange juice mixed in 1:1:1 ratio. I first heat
the tomato juie in a microwave for 1 min and then add the other juices, mix
and dink it just before cereal whihc consists of bran flake + 10 almonds, 1
brazil nut, flax seed powder, pumpkin seeds and sunfloer seeds + milk and
soymilk.
For me oral glutathione (150 mg) gives me a lot of energy and also
reduces the stiffness and musclar pain in the calf muscle.
Co Q10 (60 x 2 mg) is known to reduce the rate of progression of PD. I
see a general improvement in postural instability wth Co Q10. (The study
used 1200 mg/ day of Vitaline product).
Phosphatidylserine is helpful in improving my handwriting and general
mental alertnesss.
Blue berry, straw berry and spinach are known to protect nerve cells from
dying.
Turmeric is also neuroprotective and also has anti-cancer properties.
I am trying to stay away from sinemet as long as I can. This gives
symptomatic relief for about 4 - 5 years and then starts to do harm to the
patient, causes diskenesia.
But, you should gather the info from different sources, evaluate them,
discuss with your doctor, and then take action. Because, what works for one
person maynot necessarily work for others.
Good luck!
Raj
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----- Original Message -----
From: "Margaret Miller" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, September 22, 2002 2:09 AM
Subject: Information needed
> Hi new friends. I am wondering about those of you who take no medications
> and I would like very much to hear whether you have never taken any, or
did
> some of you decide to quit taking them? I am tempted to try to give up on
> mine, although I really am doing very well. I take Sinemet CR 25/100,
> total of two per day, Amantadine 100 mg.1 per day, Requip 1 mg.10 per day,
> Paxil 40 mg. per day, and since April, 1200 mg. COq10 per day.. In
> addition to PD, I have osteoporosis and osteoarthritis, for which I take
> 200 mg Celebrex per day, 1500 mg calcium, and 70 mg Fosamax per week. I
> will not be covered under my former employer's plan after November, and we
> think the cost of all these prescriptions will be in the neighborhood of
> $1000 or more per month. Of course, I will get prices from all over,
> including Canada. Personally, I think that the main reason I'm doing well
> is because of my four years of water aerobics, my busy and fulfilling
life,
> and a positive attitude, rather than the medications. I wonder if any of
> you would be willing to share your experiences with me, including what
> alternative medications, if any, you take instead of the PD drugs. And
if
> you take herbal remedies, etc., how do you select a company to provide
> them? I have read the horror stories about what we THINK we're taking
> versus what is actually in these products which are not FDA regulated.
> Thank you for reading all of this. I look forward to hearing your
> thoughts. Margaret Miller
>
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