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Sometimes, dear Kathrynne, you are like a candle in the darkness. Thank you for being our friend! E of the headdress ----- Original Message ----- From: "Kathrynne Holden, MS, RD" <[log in to unmask]> To: <[log in to unmask]> Sent: Saturday, October 05, 2002 10:50 AM Subject: Re: New to PD > Maggie Mauney wrote: > > Thanks to all of you who replied to my recent email to the list. I'm still > > trying to come to terms with my diagnosis, and was only diagnosed last week, > > so I have many questions on what my future holds. > > > > I'm 52 years old, and am in terrible health--I'm diabetic, have had 3 heart > > attacks, have severe osteoporosis, and now PD; I guess I'm expecting to die > > suddenly any minute now. > > > > I still have to try to work, since I've been told I don't qualify for > > disability until I'm unable to work for 12 months. I'm a cashier at a > > grocery chain, and the tremors and difficulty walking are definitely > > interfering with my work. I live alone in the country--driving is difficult > > now--I have problems getting into and out of the car, and if I drive for a > > good while, I get dizzy and disoriented. My family is not nearby, and it's > > difficult for any of them to understand my limitations and my fears. > > > > I do, however, live just a few minutes from Duke University Medical Center, > > and from University of North Carolina Hospitals, so I have a good referral > > network close by. I want to learn more about what to expect, and will be > > following the posts on the list to get some suggestions about how to manage > > better. I will probably buy a cane to use for walking--with my severe > > osteoporosis, I worry about breaking bones when I fall. I will try to > > discuss my concerns with my neurologist--though he has a very hectic > > practice and is always quite rushed. > > > > Thanks for the links for more information. I will definitely check them > > out. > > > > Maggie Mauney > > Dear Maggie, > With diabetes, heart disease, osteoporosis, and PD, you have very real > concerns, and if your doctor hasn't already done so, s/he should refer > you to a registered dietitian for medical nutrition therapy. > > You may qualify for disability -- a gentleman with PD has generously > compiled information regarding SSDI for people with PD on his website: > > Parkinson's, SSDI, and you: Social Security Links with the Person with > Parkinson's in Mind > > http://users.adelphia.net/~firingpin/ssdi.html > > For faster loading, click on the little white "building icon." On the > next screen, some browsers may show a vertical row of "red lights" with > text next to them; other browsers may show the text farther down the > screen; be sure to scroll to the bottom of the screen. > > I would certainly consider this, and would also ask other listmembers > about their experiences -- some have been very successful! > > If you are near Raleigh, here is the name of a dietitian who will work > with people who have PD, and I have promised to help her at need: > > Barbara Ann Hughes, PhD,RD,LDN,FADA > 4208 Galax Dr. > Raleigh, NC 27612-3714 > 919 787-2949 > > Best regards, > Kathrynne > > > > -- > Kathrynne Holden, MS, RD > "Ask the Parkinson Dietitian" http://www.parkinson.org/ > "Eat well, stay well with Parkinson's disease" > "Parkinson's disease: Guidelines for Medical Nutrition Therapy" > http://www.nutritionucanlivewith.com/ > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn