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My intention was to reply to those folks individually who wrote in
support of my pending surgery individually by the time the surgery (not
DBS) came around.  My apologies once again.  I could barely get things
pulled together in time for the surgery.  Thank you so very much for your
support.

I'm happy to report that it went really well and that nasty cyst was
benign--the best kind.  My recovery from surgery--they were able to do it
laporascopically--was pretty easy.  Getting back fully on PD meds, is
another story.  Haven't been able to titrate back up on Requip--had to
get off it fully--not compatible GI-wise with pre-op and recovery--as a
result, I'm really struggling without it. Takes me forever to do
anything, like typing or dressing etc.  Like you all know the drill.
Can't wait for better control of my PD.  (Heavy correcting and spell
checking)

Had to reschedule my evaluation for DBS with UCSF until January.  Going
through this major, but relatively easy surgery, made me truly aware of
how difficult it will be to accomplish DBS alone.  And the long intervals
without calibration or meds fully working and getting to SF, 1 and half
hour drive each way without symptom control--for six months--and what if
infection?  It's not looking realistic folks.  I have some creative
thinking to do.  And a lot of bargaining to do with the team at UCSF.
It's going to take alot longer for me to be able to see this thing
through.  And after all the complicated machinations of being alone and
trying to organize all the logistics of this recent surgery, which by
contrast was straightforward, it gives me pause.  What if speech
problems?  My voice is all that really works well.

Trying to be a patient patient,

Charlotte Mancuso
--------- Forwarded message ----------
From: [log in to unmask]
To: [log in to unmask],[log in to unmask]
Date: Sun, 22 Sep 2002 06:52:16 -0700
Subject: Pointers, advice needed...
Message-ID: <[log in to unmask]>

To those kind folks who responded to my the subject e-mail, and who gave
wonderful advice, support, and good cheer,  A BELATED THANK YOU!  My
intention is to reply to you individually by the time Tues comes around.
In the meantime, my apologies for the belated thank yous.

I feel as though I'm reinforced with your support.

Thanks much!

Charlotte

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