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----- Original Message ----- From: "Charlotte Mancuso" <[log in to unmask]> To: <[log in to unmask]> Sent: Saturday, October 19, 2002 12:45 PM Subject: Good intentions...Re: Pointers, advice needed... > My intention was to reply to those folks individually who wrote in > support of my pending surgery individually by the time the surgery (not > DBS) came around. My apologies once again. I could barely get things > pulled together in time for the surgery. Thank you so very much for your > support. > > I'm happy to report that it went really well and that nasty cyst was > benign--the best kind. My recovery from surgery--they were able to do it > laporascopically--was pretty easy. Getting back fully on PD meds, is > another story. Haven't been able to titrate back up on Requip--had to > get off it fully--not compatible GI-wise with pre-op and recovery--as a > result, I'm really struggling without it. Takes me forever to do > anything, like typing or dressing etc. Like you all know the drill. > Can't wait for better control of my PD. (Heavy correcting and spell > checking) > > Had to reschedule my evaluation for DBS with UCSF until January. Going > through this major, but relatively easy surgery, made me truly aware of > how difficult it will be to accomplish DBS alone. And the long intervals > without calibration or meds fully working and getting to SF, 1 and half > hour drive each way without symptom control--for six months--and what if > infection? It's not looking realistic folks. I have some creative > thinking to do. And a lot of bargaining to do with the team at UCSF. > It's going to take alot longer for me to be able to see this thing > through. And after all the complicated machinations of being alone and > trying to organize all the logistics of this recent surgery, which by > contrast was straightforward, it gives me pause. What if speech > problems? My voice is all that really works well. > > Trying to be a patient patient, > > Charlotte Mancuso >parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn