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Hi all,

As I wrote several weeks ago, my father has had Parkinson's for 27 years,
doing exceptionally well.  I've attached his med. schedule to hopefully name
some of the drugs that have helped my father--perhaps, in turn, helping some
of you.  The Sinemet, with PRN l/2-1 tablet, works well.  We had to do away
with some of the agonists (Permax, Mirapex, etc.) because they caused
syncope--especially about 9 a.m.  The Proamatine is to raise the blood
pressure during the day and the Hydralazine is to lower high blood pressure
while he is sleeping.

My father's neurologist is exceptional--thoughtful, intelligent, very up to
date on everything that's happening in the world of PD.

For the last 6 months or so, my father was extremely lethargic--we just
couldn't wake him up (even with ice chips placed on his neck, hands, arms.
The neurologist introduced 5 mg. Ritalin at 7:30 a.m.  It was just like the
movie with Robin Williams and Robert DiNero--"Awakenings".  He came to life!
It was tremendous!  But it only lasted about l/2 day and then he napped for
about 5 hours until dinner and then slept all night after dinner.

He aspirated on 8/30/02 and has been hospitalized ever since.  Even though
PT is working with him, he's become very, very deconditioned.  My father, my
mother and I concurred that a feeding tube for the nutrients that he
requires was the best thing.  Several nurses and doctors, including my
father's neurologist, felt that his quality of life was not good over the
last six months or so and suggested that nature take its course and for us
not to go ahead with the gastric tube.  The procedure was done just a week
ago.  It really is helping him get meds when he's too tired and nutrients
when he's asleep.  He still eats pureed food and honey-thick liquids.  My
father is 79.  He still loves to sing, still flirts (innocently) with the
young ladies, and still loves food.  So, that's HIS quality of life--I
believe he is content.

My question:  have any of you taken Ritalin to offset the side effects of
the Parkinson's meds and other meds?  If so, how did it affect you?  My
father, who was walking until six months ago (and dancing last October), is
very down because he sleeps so much and is missing much of the days again.

Any help on this one would be appreciated.

Deb White
Boston

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