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Ray, This Botox deal really looks good! Have you noticed any more subtile improvement since Wednesday? This is really exciting, and you are sort of on the front lines of this treatment, yes? RE: CQ10, I asked my Neuro group at USC(sorry for the blasphemy) and they told me; " You can access the website: www.vitalinecoq10.com The study recommends 1200 mg of CoQ10 a day. Dr. Lew has already checked out the various suppliers of CoQ10 and the best price he has found has been from this company, who actually made the CoQ10 for the study. The CoQ10 comes in 300 mg chewable tablets with 60 tablets per bottle. You would have to take 1 tablet three times a day, and they cost $100.00 per bottle. There is a $7.00 shipping charge. You would have to buy two bottles a month, so that's $200.00 a month, which is not covered by insurance. We recommend only buying one bottle at first just to make sure it's something you can tolerate and stick to." (I haven't decided whether to give it a try yet or not. I'll let you know if I do, and we can perhaps compare notes) We got home from Arizona at about midnight on Wed, and yesterday was a complete wash out. There is a really good reason for my exhaustion. Today is a bit better, but I am conserving energy in hopes tomorrow will be a "top o the line" good day.. Have to drop husband at LAX by 7am; he is going to the Big Island for a conference and is taking his TRUNKS AND FINS. I wonder how many sessions he will actually attend? Then, I'm supposed to be at Good Samaritan Hospital in downtown L.A. at 8:30 for a Movement Disorder update series I signed up for in a week ago. I hate down town,and hardly ever go there. I get breakfast and lunch and the thing is free, so I guess it won't be a total loss . If there is anything that really sounds new, I will report, of course. I have another report in the works, and am trying to decide whether to send it t only you and Edith, or to all the TB.Bunch ( I'm not sure that name won't soon get confused with the nasty disease with the same initials.) All I can say right now is that I RODE A MULE (hence total wipe out) all the way down to the bottom of the Grand Canyon and back up again the next day. I must be out of my mind and I am trying to remember it in vivid detail so I can share my insanity with friends. By the way, I saw your TB Club note to Mama Bear and Cubs. Phooey! Personally, I am not particularly involved with the bear acquisitions, but don't mind, and am able to toss in a bears worth or two when ever needed. I certainly don't feel that I have taken part in any of the decisions that have been made so far, but I am enjoying Edith's enthusiasm quite a lot. It seems to be nicely therapeutic. This thing is not just about about bears anyway, but about some extremely nice people we have come to know, who care about others and who want to bring a bit of light or comfort to people who are worse off than themselves. It is a bit like a mini, sort of sub-list. You guys are super and I like you a lot. If I have anything to share with the bunch, there is no way, no how, I would ever leave your name off the list. In truth, I rarely send email to the whole group anyway, and Most of my correspondence, and occasional phone calls, are posted to you and/or Edith, and infrequently to Joan and Bunny. At the moment, I'm trying NOT to earn a bear for myself. So far so good! Please keep me posted on progress, I am hoping and doing that other quasi religious thing in your honor. fondly, Nancy(e) On Wednesday, October 16, 2002, at 10:37 PM, Rayilyn Brown wrote: > , > > I had 4 painless injections in the calf of my left leg today. Dr.. > Swope > told me it might take 1-7 days til and if it works. If it does it > could last > 3 mos. He wants to see me in 2 weeks to see if it is working. > > Don't know if it will help my toes - his plan was to relax the leg > muscle > so I would quit walking on my toes like I've been doing for about 3 > yrs. it > may be my imagination, but I think it is a little better already. > He said some people had 3 day flu like reaction, like to vaccine. > > I really like this neuro, he does lots of dystonia botox so he knows > what > he's doing, I think and he knows one of docs on COQ-10 study. He told > me he > had read the abstract,, but had list of stuff to look up. He doesn't > see any > harm in it, but thought my dosage was probably too low to do me any > good and > the higher dose could cost over $200/mo. He is not opposed to > "alternative > meds' like so many and is top neuro in this area at Loma Linda Medical > Center > which has great reputation. > > He is open-minded - this leg botox thing was my idea > > Linda Herman's 'but wait" was really on the money. > > Will just have to wait and hope for best, but, hey, it didn't hurt one > bit. > At least I can say I tried it. > > I will continue to sneak back into Sinemet. > > Having a neuro you trust and respect has sure raised my spirits, even > if my > leg refuses to go down > Ray > > > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn