Ray,
This Botox deal really looks good! Have you noticed any more subtile
improvement since Wednesday? This is really exciting, and you are sort
of on the front lines of this treatment, yes?
RE: CQ10, I asked my Neuro group at USC(sorry for the blasphemy) and
they told 0000,0000,0000me;0000,0000,FFFF
" You can access the website: www.vitalinecoq10.com
The study recommends 1200 mg of CoQ10 a day. Dr. Lew has already
checked out the various suppliers of CoQ10 and the best price he has
found has been from this company, who actually made the CoQ10 for the
study. The CoQ10 comes in 300 mg chewable tablets with 60 tablets per
bottle. You would have to take 1 tablet three times a day, and they
cost $100.00 per bottle. There is a $7.00 shipping charge. You would
have to buy two bottles a month, so that's $200.00 a month, which is
not covered by insurance. We recommend only buying one bottle at
first just to make sure it's something you can tolerate and stick to."
(I haven't decided whether to give it a try yet or not. I'll
let you know if I do, and we can perhaps compare notes)0000,0000,0000
0000,0000,FFFF
We got home from Arizona at about midnight on Wed, and
yesterday was a complete wash out. There is a really good reason for
my exhaustion. Today is a bit better, but I am conserving energy in
hopes tomorrow will be a "top o the line" good day.. Have to drop
husband at LAX by 7am; he is going to the Big Island for a conference
and is taking his TRUNKS AND FINS. I wonder how many sessions he will
actually attend?
Then, I'm supposed to be at Good Samaritan Hospital in downtown L.A.
at 8:30 for a Movement Disorder update series I signed up for in a
week ago. I hate down town,and hardly ever go there. I get breakfast
and lunch and the thing is free, so I guess it won't be a total loss .
If there is anything that really sounds new, I will report, of course.
I have another report in the works, and am trying to decide whether to
send it t only you and Edith, or to all the TB.Bunch ( I'm not sure
that name won't soon get confused with the nasty disease with the same
initials.) All I can say right now is that I RODE A MULE (hence
total wipe out) all the way down to the bottom of the Grand Canyon and
back up again the next day. I must be out of my mind and I am trying
to remember it in vivid detail so I can share my insanity with friends.
By the way, I saw your TB Club note to Mama Bear and Cubs.
Phooey!
Personally, I am not particularly involved with the bear acquisitions,
but don't mind, and am able to toss in a bears worth or two when ever
needed. I certainly don't feel that I have taken part in any of the
decisions that have been made so far, but I am enjoying Edith's
enthusiasm quite a lot. It seems to be nicely therapeutic.
This thing is not just about about bears anyway, but about some
extremely nice people we have come to know, who care about others and
who want to bring a bit of light or comfort to people who are worse
off than themselves. It is a bit like a mini, sort of sub-list. You
guys are super and I like you a lot. If I have anything to share with
the bunch, there is no way, no how, I would ever leave your name off
the list. In truth, I rarely send email to the whole group anyway,
and Most of my correspondence, and occasional phone calls, are posted
to you and/or Edith, and infrequently to Joan and Bunny.
At the moment, I'm trying NOT to earn a bear for myself. So far so
good!
Please keep me posted on progress, I am hoping and doing that other
quasi religious thing in your honor.
fondly, Nancy(e)
On Wednesday, October 16, 2002, at 10:37 PM, Rayilyn Brown wrote:
,
I had 4 painless injections in the calf of my left leg today. Dr..
Swope
told me it might take 1-7 days til and if it works. If it does it
could last
3 mos. He wants to see me in 2 weeks to see if it is working.
Don't know if it will help my toes - his plan was to relax the leg
muscle
so I would quit walking on my toes like I've been doing for about 3
yrs. it
may be my imagination, but I think it is a little better already.
He said some people had 3 day flu like reaction, like to vaccine.
I really like this neuro, he does lots of dystonia botox so he knows
what
he's doing, I think and he knows one of docs on COQ-10 study. He told
me he
had read the abstract,, but had list of stuff to look up. He doesn't
see any
harm in it, but thought my dosage was probably too low to do me any
good and
the higher dose could cost over $200/mo. He is not opposed to
"alternative
meds' like so many and is top neuro in this area at Loma Linda Medical
Center
which has great reputation.
He is open-minded - this leg botox thing was my idea
Linda Herman's 'but wait" was really on the money.
Will just have to wait and hope for best, but, hey, it didn't hurt one
bit.
At least I can say I tried it.
I will continue to sneak back into Sinemet.
Having a neuro you trust and respect has sure raised my spirits, even
if my
leg refuses to go down
Ray
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