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I am told that Vitaline is selling the same as was used in the study. The current labeling doesn't reflect the vitamin E which is included. They also sell a CoQ10 product for the HD community which does not have vitamin E hence the mislabeling. They are correcting this and future shipments will point out that the label has been corrected and the product does contain vitamin E. [log in to unmask] dn ----- Original Message ----- From: "Bob Allison" <[log in to unmask]> To: <[log in to unmask]> Sent: Monday, November 04, 2002 6:24 PM Subject: Re: CoQ10 Study Results > Linda Vitaline is not selling the same stuff used in the study. The study > tablets had 300IU of vit E in each 300 mg tab of CoQ. The tablets sold by > Vitaline only have the CoQ. Thus, the product being marketed by Mr JOhnson > is not proven effective or safe! Bob > ----- Original Message ----- > From: "Linda J Herman" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Monday, November 04, 2002 7:24 PM > Subject: Re: CoQ10 Study Results > > > > I have a copy of the full CoEQ10 article from the Archives of Neurology. > > It is in .pdf format and includes all the statistics and graphs. Will be > > glad to email it to list members who can understand the statistics and > > explain it to the rest of us. > > > > I'm finding that this study is causing a dilemma. The results - even if > > they are based on a small number of subjects did report that at the > > largest dose -1200 mg/ day there was clinical evidence of slower > > progression. Similar positive results were found in a study with > > Huntingon's patients, but with 600 mg/day. > > The researchers and the NINDS do not advise patients to start taking the > > substance based on this one study. Yet some of our neuros are telling us > > that we should -if there's a chance it will slow the progression and > > there were no reported bad side effects - why not? > > > > But if you buy the Vitaline product - used in the clinical trial and > > supposedly "proven effective" as stated by Vitaline- the "discounted" > > monthly cost for 1200 mg/day is about $200 a month. Because CoEQ10 is > > considered a food supplement , not a prescribed drug - it is not covered > > by medical insurance . How many people will be able to afford it? > > You can find web stores that sell it for about $100/month , but because > > it is not regulated by the FDA - you can't be sure of what you're > > getting. Some reports comparing different brands of CoQ10 report on > > variations from 17% - 100% of the active product. > > > > Would also welcome more thoughts / ideas on this. > > > > Linda > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn