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Hi Joan, First of all, you do wonderful work. You are one of my heroes. Never belittle yourself or your looks. You look just fine to me. How to get the national media to focus on the "silent majority" of us struggling to button our coats or fumbling for change at the cash register is the question. What the public doesn't understand is that our disease is a progressive one. We are struggling to stay one step ahead of a disease that will strip of our faculties until we are truly silent, and PWP's don't run very fast. Ours is a celebrity-obsessed society, and celebrity PD is a double-edged sword. Perhaps it would be better if Reno were not so arrogant and Pope John Paul did not suffer as a saint. Perhaps it would have been better if Michael J's book didn't describe him as a "lucky" man. Their lives are easier than ours. They have money as a cushion. We need them because without them we have no voice, but are they telling our story? Carole Hercun --- Joan E Snyder <[log in to unmask]> wrote: > what a perfect analogy to Chaucer! i too, agree that ours > is a story to > be told and heard by people all over the nation...but how > to attract > that kind of attention goes beyond all of my best > efforts. here in my > little town of chillicothe, illinois and also in our big > neighbor > peoria, i have an incredible relationship with the media. > in our one > chillicothe newspaper, the mayor and i seem to be in a > race to see who > gets more coverage. our local NBC affiliate anchor woman > is my master > of ceremonies at all my events and i am a frequent guest > on all 3 > stations. and at the peoria newspaper, they have had to > tell journalists > to write about other people besides me. honestly, i do > not do this for > my own gratificaition...i hate to see myself on tv-i'm > so fat because > of the drugs, my voice is just another reminder of what i > have lost, my > self-confidence is in the toilet and my face is a > zombie-like mask. but > i will and have done whatever it takes to get the story > out. having pd > has emboldened me in ways that i would have never thought > possible. i > have gone into the world headquarters of Caterpiller, > Inc. and asked > them for money and gotten it. i have gone into the ceo's > office at a > major medical affiliate and asked for $10,000 and gotten > it. when dennis > greene and i had our book published by margaret tuchman > and the folks at > the alliance, i signed autographs, sent it to all the > people whom i > thought might have some clout-but no one answered. i even > tried to use my > Sidney Dorros award as leverage into some of the great > halls of > information and power. i have written to all of the > daytime talk shows > scores of times, begging for them to give us a chance. i > have tried all > the network newsmagazines-no go (except once i got an > email back from a > senior editor on NBC nightly news who gave me the name of > someone on the > Today show but they had already changed jobs). yes, i > agree that someone > needs to tell our story, someone who can do it with > dignity and > compassion and just the right sprinkle of irony and > justifiable anger. i > would try to be that person if i could only figure out a > way to get in > the door. thanks-just blowing off some of my > frustrations. i guess it's > who you know; not what you know! > > -- > Joan E. Blessington Snyder 50/11 > http://www.pwnkle.com/jes/jes_web/index.htm > <[log in to unmask]> > "Hang tough...........no way through it but to do it." > Chris-in-the-Morning (Northern Exposure) > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn __________________________________________________ Do you Yahoo!? U2 on LAUNCH - Exclusive greatest hits videos http://launch.yahoo.com/u2 ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn