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Rayilyn, yes, that hits home. I do not have PD, but Dad did. He was diagnosed in '99 and he was a medical doctor, M.D. (http://dialforacure.com/html/company.html) He was devastated, and he fought with all the resourses he had. His condition was not the normal with the physical dehabilitating happenings over many years, but his was a mental melt down. Folks that say "it takes a long time", well that is plain false. Dad passed in less than 3 years. And what really hurt, was that HE KNEW what was happening. Thats the thing, you know what is happening, but you can't do much about it, but pray, love, and suffer, and not always in that order. He did all he could. In the end days, from late December of 2000 to Jan 2001, and finally Feb 2, 2001, (http://www.tryondailybulletin.com/Obits/Obits.asp?ArticleID=1568) he was going through the downward spiral, He was the best Dad, greatest Physician, and an awesome Husband to Mom. People that say "its not painful" are just blind, and just dont know. They need "educating", thats all. People that make any kind of comment that "angers" you, they just don't know. I know I will never understand the "core" of what you folks are suffering, as I do not have PD, but I know the pain of being a first hand witness to my own Dad, I still hurt today when I rehash the memories of the latter years. I cannot dwell on that, or Dad would truly have an issue with that! Dad was a disciplinarian, (strict!), and very conservative, tedious, meticulous, and very focused all his life. He believed in Duty, God, Country, doing your best, following through, and humour, love, ...........If he knew I was "dwelling" on his last days, he would truly have a fit. He would tell me, : "Jeff, remember the good days!, I love you, Jeff, and dwell on the good memories, remember the days when we talked, when we walked, when we loved each other, do not dwell on the bad, but the good, I await our reunion, stay the course, fight the good fight!" Like all the wonderful Thanksgivings we had! He called me "Foffy" when he really wanted to tell me he loved me. I can see his face, his smile, his eyes, his stature, and I can feel his embrace, whew! man-o-man, what a Dad! Thank-ya Jesus for the Dad I had! Keep typing Rayilyn, thanks. jeff Help Find the Cure! http://dialforacure.com ----- Original Message ----- From: "Rayilyn Brown" <[log in to unmask]> To: <[log in to unmask]> Sent: Saturday, November 09, 2002 4:12 PM Subject: ER and PD/it does destroy your life, just wait and see > To those of you writing about how PD has destroyed your life I, add my > voice, which I am losing now. > > It is a real problem that the public does not understand what it really does > to MOST OF US. Unfortunately, those PWP who are able to work (and they have > every right to do so if they can) give an impression to the public that it is > not such a big deal and you have an "almost normal life', like I did when I > had ovarian cancer. > > When i was DX over 6 yrs ago a friend of my mother commented "at least it's > not painful", another,, "it takes a long time". I can't express my anger > over those ignorant remarks, but that is what we are facing. It just doesn't > look too bad to others who don't know what it is like to shake eternally, for > only one symptom. > > I can't do anything anymore but wait for the end and correct my one-handed > typing on the computer. Rayilyn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn