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Hi Sandy, I'm Paula from Pennsylvania, 48, have had to give up working, had successful DBS two years ago, but I feel like I've had to give up all the things that gave me a reason for living. I am very grateful that I have such an intelligent husband and two beautiful blonde daughters, 23 and 21. I was 128 lb... Now I am 183+. It's because I can't walk whereas I was on myfeet 18 hour days when I co-owned and operated our family business. I was in charge of the back of the house - kept on the grill so orders would get done right and timely. I also did payroll, accounts payable, ordering of uniforms, three loads of towels daily, and maintained a home with two children, two dogs,a cat, and fish. Now after being out of the business almost six years, I'm not much more than an embarrassment. I don't look nice in my clothes anymore, I am not supposed to drive if not necessary, I can't go grocery or Xmas shopping alone. I had beautiful handwriting I was so proud of. Now I can't read my own signature. So...I eat...and that's not helping either. So if ER helps in any way, I'm for it. Paula---- - Original Message ----- From: "Sandy Fowler" <[log in to unmask]> To: <[log in to unmask]> Sent: Friday, November 08, 2002 10:24 AM Subject: Re: ER and PD > Hello, I am another unfortunate sole to be in that percentile of humans > with PD. I am in Texas and just added myself to this PIEN. I am still > confused with some things here, but I'll figure it out. I wanted to > respond to KM Janis, MD. Born in 1953, gave me the fortune of growing > up in the 50's, 60's. TV was 3 networks, and changing meant getting up > off your buff to turn the knob.......I always knew that the Skipper, > Gilligan, and all the gang didn't really have a ship wreck. And > Gunsmoke, Bonanza, and Lassie, were all gotta watch shows. It was > fantasy and make believe. Lost in Space was great too. I use to watch > 30 Something faithfully, even though it was kind of boring. ER was > indeed a gotta watch show when it started, however, now, I don't watch > much. My impression of all the talk about this character who has PD is > kind of silly. I am quite sure that a career/profession cut short by > these chronic illnesses is devastating. ER is a form of entertainment. > This "character" is just that. PD people know of the premature end to > many things. I am a landscaper, and I am 49 years young and damn this > PD. I have NOT seen ER yet with this character but people are being > made aware, and that, to me, is more important. In my personal life, > even my own family is not quite sure what to do about me. So, for now, > it's Plan B, or maybe C. To the anesthesiologist, [did I spell that > right] I most certainly mean no disrespect to you. Please don't get me > wrong. The more the general public knows, the better for me, and > you........... Sandy Fowler in Texas, ((((Go Stars!!!!!!!!!!!))))))) > ha....email: sandyfowler@sbcglobal.net............(:}] > > -----Original Message----- > From: Parkinson's Information Exchange Network > [mailto:[log in to unmask]] On Behalf Of [log in to unmask] > Sent: Monday, November 04, 2002 7:58 AM > To: [log in to unmask] > Subject: ER and PD > > As an Anesthesiologist with PD disabililty causing > a premature end to my clinical practice of Medicine I > am concerned about this "character" appearing on > ER. The deficits in co-ordination, manul dexterity, > communication along with vision and urge incontinence > make it impossible for an individual to function with the > precision and skilled task rquirements of an ER. > > Any deficit that might impair the ability to respond > quickly and effectively is inappropriate for the system > to encourage since it cannot help but influence outcome. > > It is a wonderful feeling to be able to contribute despite > being a patient with PD BUT IMHO the ER with it's > responsibilities and demands is not the place to do it. > > KM Janis, MD > > I missed that ER address -- could someone send it to me > please ???. > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn