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Lack of a good response to Sinemet sense to be a characteristic of not just Parkinson's , but Shy-Drager syndrome. It mimics the Parkinson symptoms, but does not respond that well to Sinemet but to Miraplex like drugs. Try the Shy-Drager or MSA websites or Don Summer's website for more information. -----Original Message----- From: Parkinson's Information Exchange Network [mailto:[log in to unmask]]On Behalf Of Ervin McCarthy Sent: Saturday, November 09, 2002 6:49 PM To: [log in to unmask] Subject: Re: FDOPA PET SCAN BROCHURE/results show PD Rayilyn, I am getting the same lack of response from Sinemet, I never seemed to be "on" I have been trying Sinemet for about three months and at the point of thinking of quitting after I see the neurologist. Ervin McCarthy ----- Original Message ----- From: "Rayilyn Brown" <[log in to unmask]> To: <[log in to unmask]> Sent: Saturday, November 09, 2002 12:52 PM Subject: Re: FDOPA PET SCAN BROCHURE/results show PD > Tom, the results of my F-DOPA PET scan at UCLA stated "results consistent > with Parkinson's Disease". I have minimal response to Sinemet, (I don't > really know what an "ON" is) which I'm on again, but at very low dose to > prevent making dystonia in my toes so bad I can't walk. I think it helps a > little, but I'm still not sure....and it doesn't get better with higher doses. > > I don't regret having and paying for the scan and think it should be routine. > > Keep up the good work, you are our hope, Rayilyn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn