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what a perfect analogy to Chaucer! i too, agree that ours is a story to
be told and heard by people all over the nation...but how to attract
that kind of attention goes beyond all of my best efforts. here in my
little town of chillicothe, illinois and also in our big neighbor
peoria, i have an incredible relationship with the media. in our one
chillicothe newspaper, the mayor and i seem to be in a race to see who
gets more coverage.  our local NBC affiliate anchor woman is my master
of ceremonies at all my events and i am a frequent guest on all 3
stations. and at the peoria newspaper, they have had to tell journalists
to write about other people besides me. honestly, i do not do this for
my own gratificaition...i hate to see  myself on tv-i'm so fat because
of the drugs, my voice is just another reminder of what i have lost, my
self-confidence is in the toilet and my face is a zombie-like mask. but
i will and have done whatever it takes to get the story out. having pd
has emboldened me in ways that i would have never thought possible. i
have gone into the world headquarters of Caterpiller, Inc. and asked
them for money and gotten it. i have gone into the ceo's office at a
major medical affiliate and asked for $10,000 and gotten it. when dennis
greene and i had our book published by margaret tuchman and the folks at
the alliance, i signed autographs, sent it to all the people whom i
thought might have some clout-but no one answered. i even tried to use my
Sidney Dorros award as leverage into some of the great halls of
information and power.  i have written to all of the daytime talk shows
scores of times, begging for them to give us a chance. i have tried all
the network newsmagazines-no go (except once i got an email back from a
senior editor on NBC nightly news who gave me the name of someone on the
Today show but they had already changed jobs). yes, i agree that someone
needs to tell our story, someone who can do it with dignity and
compassion and just the right sprinkle of irony and justifiable anger. i
would try to be that person if i could only figure out a way to get in
the door. thanks-just blowing off some of my frustrations. i guess it's
who you know; not what you know!

--
Joan E. Blessington Snyder       50/11
http://www.pwnkle.com/jes/jes_web/index.htm
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"Hang tough...........no way through it but to do it."
Chris-in-the-Morning   (Northern Exposure)

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