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Well, like all things, there are many sides in which to peer. I wish to elaborate more, I have much to learn, but alas, this southern girl was introduced to hockey and tonight the Stars play Toronto. I must ready myself, and now, with PD, it takes me longer to do this. Thanks ...sandy in Texas............. -----Original Message----- From: Parkinson's Information Exchange Network [mailto:[log in to unmask]] On Behalf Of Real Oldone Sent: Friday, November 08, 2002 10:55 AM To: [log in to unmask] Subject: Re: ER and PD I understand the need to expose the public the Parkinson's in order to hopefully increase funding for research. However no less important (perhaps even more important) is the recognition that because the disease is not known for a whole lot more that 'shaking and stiff' it may serve in this instance to form the wrong public opinion and trend certain corporations and other agencies who provide services (ie Social Security, Disability Corporations etc etc) away from recognizing the true scope and severity of this disease and its progressive effects on disability and hence occupational abilities etc. This may make it more difficult for the lone citizen to successfully negotiate with their disability company (that in many regards may be somewhat clueless as to the profound effects of Parkinson's). Fortunately the Social Security Dept. is well versed relative to written protocol and assessment for disability and Parkinson's, but government policies can be influenced by politicians that themselves may be misinformed as to the full effects and scope of Parkinson's Disease. I also was a critical care anesthesiologist that was forced to leave my life's passion and pursuit at the age of 45 due to this damnable and debilitating disease. The changes in motor skills and coginitive changes (I am requiring Aricept for early cognitive deterioration and require additional medication for Parkinson's base depression, and low dose antipsychotic for dopamine replacement hallucinations; none of which are uncommon) quintessentially disqualify me from participation in patient care. I can no longer hold an active license to practice medicine; something I was born and bred to do and spent the better part of my life aggressively pursuing. I agree wholeheartedly that we need as much exposure as possible however for the thousands out there that may be undergoing efforts to obtain services and support in order to survive and perhaps like myself continue to support a family; they have enough of a profound battle and the addition of new misperceptions will be ultimately of less benefit than utility. [log in to unmask] ----- Original Message ----- From: "Sandy Fowler" <[log in to unmask]> To: <[log in to unmask]> Sent: Friday, November 08, 2002 8:24 AM Subject: Re: ER and PD > Hello, I am another unfortunate sole to be in that percentile of humans > with PD. I am in Texas and just added myself to this PIEN. I am still > confused with some things here, but I'll figure it out. I wanted to > respond to KM Janis, MD. Born in 1953, gave me the fortune of growing > up in the 50's, 60's. TV was 3 networks, and changing meant getting up > off your buff to turn the knob.......I always knew that the Skipper, > Gilligan, and all the gang didn't really have a ship wreck. And > Gunsmoke, Bonanza, and Lassie, were all gotta watch shows. It was > fantasy and make believe. Lost in Space was great too. I use to watch > 30 Something faithfully, even though it was kind of boring. ER was > indeed a gotta watch show when it started, however, now, I don't watch > much. My impression of all the talk about this character who has PD is > kind of silly. I am quite sure that a career/profession cut short by > these chronic illnesses is devastating. ER is a form of entertainment. > This "character" is just that. PD people know of the premature end to > many things. I am a landscaper, and I am 49 years young and damn this > PD. I have NOT seen ER yet with this character but people are being > made aware, and that, to me, is more important. In my personal life, > even my own family is not quite sure what to do about me. So, for now, > it's Plan B, or maybe C. To the anesthesiologist, [did I spell that > right] I most certainly mean no disrespect to you. Please don't get me > wrong. The more the general public knows, the better for me, and > you........... Sandy Fowler in Texas, ((((Go Stars!!!!!!!!!!!))))))) > ha....email: sandyfowler@sbcglobal.net............(:}] > > -----Original Message----- > From: Parkinson's Information Exchange Network > [mailto:[log in to unmask]] On Behalf Of [log in to unmask] > Sent: Monday, November 04, 2002 7:58 AM > To: [log in to unmask] > Subject: ER and PD > > As an Anesthesiologist with PD disabililty causing > a premature end to my clinical practice of Medicine I > am concerned about this "character" appearing on > ER. The deficits in co-ordination, manul dexterity, > communication along with vision and urge incontinence > make it impossible for an individual to function with the > precision and skilled task rquirements of an ER. > > Any deficit that might impair the ability to respond > quickly and effectively is inappropriate for the system > to encourage since it cannot help but influence outcome. > > It is a wonderful feeling to be able to contribute despite > being a patient with PD BUT IMHO the ER with it's > responsibilities and demands is not the place to do it. > > KM Janis, MD > > I missed that ER address -- could someone send it to me > please ???. > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn