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Hi

My name is Pam and I have had Parkinsons for 11 years.  So far I have
been extremely lucky in that PD hasn't taken over my life completely.  I
have been fighting it all the way.  I moved to Syracuse, NY from Houston,
Texas  to be close to family 5 years ago knowing that sooner or later I
might be in a situation that I would need a caretaker.  I am fortunate
that I can still drive, live on my own and have a job.  I was doing
aerobics when I learned I had PD and decided that the only way to fight
was  to continue to exercise.  I changed my priorities and added more
aerobic classes to my schedule.  When I moved here I didn't have a
neurologist and finally found one that didn't require a referral from
another doctor.  Unfortunately my appointment was delayed because this
neuro had to have surgery (even doctors get sick)  When I finally got to
see her, I wasn't doing that well.  She started me on Requip and I
noticed a wonderful change within a few days.  I could actually walk
again.  I am a big fan of Requip and am on 2 mg three times a day.  I
also take the generic levadopa/carabidopa 25/100 4-5 times a day.
Sometimes it doesn't work all that good. Amitriptyline 50mg at night and
Amandatine once a day.  The neuro is pleased with me as she said I was in
bad shape when she first met me and thought that I would not be driving
nor working within a few years.  I only work 20 hours a week but it
forces me to get out every day.  I have very little tremor, but once I
relax a bit my hand or foot starts flapping.  My biggest problem is
freezing.  When I am 'off' my feet turn out so that I am walking on the
sides of my feet (its tough on shoes) and I can hardly walk.  Sometimes
the levadopa takes affect within 30 minutes and sometimes its much
longer.  I also have been falling quite a bit lately.  I am pleased to be
able to share in some of your stories.

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