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Thanks for the article Bill, I wanted to answer right away so will read it
later when I can take my time.  I've already gotten a few responses before I
even introduced myself so I need to let you all know that I am not the patient,
but the caregiver.  I just sent in my introductory note explaining that &
asking if I'm in the right place as a caregiver, of course I'll stay here for
the "newsletters" but my questions will be from the caregiver standpoint.  My
husband, Richard, has had PD for 11 years & I'd say he was in Stage 3 now. He
hasn't driven now for about 4 years maybe 5, that was my first worst battle as
of course he didn't think he had to stop but we all knew it was a must as he
was falling asleep & wasn't alert enough to drive by then.  And also by then he
was hallucinating & delusional quite often & still is.  So that's why I decided
to look for a support group to see if others out there are having the same
crazy on off symptom.  It seemed to start because he gets side effects of every
drug they try, but as I said his hallucinates & delusions are off & on.  I know
dementia is a PD symptom but his is different, the doctor says it's probably
caused by the Sinemet.  He sleeps 90% of the day but not at night, gets leg
cramps & restless most nights yet some nights he's fine, there just doesn't
seem to be any rhyme or reason to his "episodes" now that we've taken him off
everything but the Sinemet CR 50/200 right now 1/2 in the morning & 1/2 at
night.  I've tried the pills at dinner time & just before bed doesn't seem to
make a difference.  He's also taking Seroquel 2 at night to help.  We've tried
all the other drugs now on the market that help the Sinemet but he goes off
into his other world as I call it when taking anything besides the Sinemet. His
back of course is quite curved so that gives him problems, he goes for trigger
point massages once a week & that helps him for a while.

Well I'll stop here for now until I know this site is also for caregivers,
thanks again for writing so soon, it IS appreciated.  Nan

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