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******************
Kim DaRosa
Investor Relations &
Marketing Assistant
JER Partners
>1650 Tysons Boulevard
>Suite 1600
>McLean, VA  22102
>(703)714-8064 (direct)
>(703)714-8141 (fax)
[log in to unmask]
******************

I want to start by thanking you for such a wonderful website.  My mother was
diagnosed with Parkinson's about 10 years ago.  During the past several
years all she really had were the tremors and a little muscle stiffness.
When my dad passed away last December, she went down hill from there.  She
is now is a nursing home confined to a wheelchair because she can't walk.
The doctor's say that the disease attacked the muscles behind her ankles
which is what's keeping her from walking.

It is very hard for me to see my mom go through this because she was always
such a strong woman and it looks like she's giving up.  I pray everyday for
a cure or for better medication.  The medication my mom was on had serious
side effects so we've had to keep changing her medication.

Thanks to this website, I'll be able to communicate with others that are
dealing with the same things that I am.  Together we can support each other.


-----Original Message-----
From: L-Soft list server at UofT (1.8e)
[mailto:[log in to unmask]]
Sent: Wednesday, December 11, 2002 7:34 AM
To: DaRosa, Kim
Subject: You are now subscribed to the PARKINSN list


Wed, 11 Dec 2002 07:34:21

Your subscription to the  PARKINSN list (Parkinson's Information Exchange
Network) has been accepted.

Welcome! You  have joined the  PARKINSN mailing  list, also known  as the
Parkinson's Information Exchange Network (PIEnet).

Please send  a message to the  list members (if you  want to) introducing
yourself,   perhaps   telling   us   how    you   found   us,   and   any
Parkinson's-related topics you would like.

The address for posting messages to Parkinsn is:
[log in to unmask]

Let me introduce myself. I am a secretary for four faculty members in the
School  of  Nursing,  McMaster  University. In  September,  1992,  I  was
diagnosed as having Parkinson's ... hence my interest in this list.

My purpose  in starting the  list was  the exchange of  information about
Parkinson's. The  list rapidly changed  into the largest support  group I
know.  Besides its  original purpose,  the list  has become  'a means  of
feeling connected'  to others... a way  of feeling we're not  alone... of
making the road of living with pd easier to bear.

I have always felt that we hear  each other better on the list because we
can't see each  other. Symptoms, age, colour, race,  don't interfere. The
list  knows no  countries, has  nothing to  do with  money... there's  no
"what's in it for me?"

But these  same qualities mean  our words are open  to misinterpretation.
Since others can't see our wry smile or wink or hear our tone of voice, a
goal of keeping it "short & sweet" can result in appearing abrupt.

Also, the same  word can have different meanings and  different shades of
meaning to different people in different  areas of the world so care must be
taken in both your writing and your reading of the messages.

Flaming and selling  are not allowed. Please send messages  in plain text
only. Do  not make any  changes in  medication or any  treatments without
consulting your physician. Be kind.  Be honest. Share the time fairly.... if
you think you  have taken more than your share  of the list resources, you
just might have.

Keep it generally  related to Parkinson's. Don't abuse  the generosity of
the University of  Toronto's free gift of the list.  Don't include all of
the  message  to  which  you  are   replying.  Use  plain  text  with  no
attachments. Wash your hands with soap before you eat. :) In other words,
use the same common courtesy that you would elsewhere.

We need  everyone's voices if  we are going to  make a difference  in the
care and  treatment of  pd and  the motivation  and funding  of research.
Speak  up.  Tell  your  story.  Ask  your  questions.  Answer  questions.
Debate/argue   about  the   answers.   Debate/argue   about  the   goals,
administration, day-to-day  functioning of the  list. Tell a  joke... but
please don't attempt to silence anyone else's voice.

The  messages on  the Parkinsn  list  may be  personal but  they are  NOT
private... never have been. The illusion  of privacy when using e-mail is
just that: an illusion.

Never,  in the  history of  this planet,  has this  kind of  relationship
existed. We  meet in a place  that has no  walls. We talk to  our friends
whom we have  never seen. We care  deeply for other members  whom we will
never physically hug.  Folks, we're making it  up as we go  along, so any
rules have  to be  flexible. Our  Parkinsn Guidelines  can be  viewed at:
http://parkinsons-information-exchange-network-online.com/parkinsn.html

If  you  wish  to  view  Parkinsn  messages online  you  may  do  so  at:
http://parkinsons-information-exchange-network-online.com/maillist.html

I hope you enjoy your  involvement with the Parkinsn Information Exchange
Network.

Barbara Patterson Owner Parkinsn John Cottingham co-owner Parkinsn

Please save this message for future  reference, especially if this is the
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fact that  most people  will eventually  connect the  FAX machine  to the
voice line to  allow the FAX to  go through and make the  calls stop does
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People would just get mad at you.  It works pretty much the same way with
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command to [log in to unmask] You  can also tell LISTSERV how
you want it to  confirm the receipt of messages you send  to the list. If
you do  not trust  the system,  send a "SET  PARKINSN REPRO"  command and
LISTSERV will send you  a copy of your own messages, so  that you can see
that the  message was  distributed and  did not get  damaged on  the way.
After a while  you may find that this is  getting annoying, especially if
your mail program does not tell you  that the message is from you when it
informs you that new  mail has arrived from PARKINSN. If  you send a "SET
PARKINSN  ACK   NOREPRO"  command,  LISTSERV   will  mail  you   a  short
acknowledgement  instead,  which  will  look different  in  your  mailbox
directory. With most mail programs you will know immediately that this is an
acknowledgement  you  can  read  later. Finally,  you  can  turn  off
acknowledgements completely with "SET PARKINSN NOACK NOREPRO".

Following  instructions from  the list  owner, your  subscription options
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information about  subscription options, send a  "QUERY PARKINSN" command to
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search facilities. Send  an "INFO DATABASE" command  for more information on
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digested  version of  the  postings,  just issue  a  SET PARKINSN  DIGEST
command.

More  information on  LISTSERV  commands  can be  found  in the  LISTSERV
reference  card, which  you can  retrieve  by sending  an "INFO  REFCARD"
command to [log in to unmask]

----------------------------------------------------------------------
To sign-off Parkinsn send a message to: mailto:[log in to unmask]
In the body of the message put: signoff parkinsn