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Subject: Things that make you go "hmmmmmmmmmmmm" From: "Anonymous" <[log in to unmask]> Date: Tue, 17 Dec 2002 06:46:02 -0700 X-Message-Number: 14 Read this and was a bit dismayed by 2 statements: 1. When you first get the disease, you're doing OK. But three or four years into the disease you're doing terribly" 2. Both groups had a median age of about 65. Number one I don't think is a fair statement, and not sure what the source was. Does thismmean in two more years I will be doing terribly (gives me a lot of hope!!" Number two shows that the issue of young onset is still being minimalized by yhe community at large. Reent research is showing almost 40% of us are diagnosed between 40 & 50. Thomas Berdine President Young Onset Parkinson's Association www.yopa.org Founder www.youngparkinsons.com Answer: having run a pd clinic of nearly 5,000 people in phoenix and a pd clinic clinic of nearly 3,000 in miami the mean age is 60 we do not have a national data basethis is why we read that there are between 500,000 to 1,200,000 people with pd it depends on who did the survery and the bias in that clinic's population most community based surveys (where a whole community is surveyed) reveal mean age of 60 some clinic surveys (where the population of a specialty clinic is surveyed) reveals a mean age of less that 60 because young onset people will gravitate to speciality clinics although some people think there has been a shift to a younger age population in pd there is no read evidence to show this abe lieberman Thomas Berdine President Young Onset Parkinson's Association www.yopa.org Founder www.youngparkinsons.com The Young Onset Parkinson's Association is a legal corporation, incorporated as a not-for-profit in New Mexico and headquartered in Albuquerque. We are in the middle of applying for our 501C(3) federal tax exemption status and expect to have it within 2 - 6 months. If this exemption is not approved, at first, your donation may not be tax exempt until the time that we are approved federally. --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.427 / Virus Database: 240 - Release Date: 12/6/2002 ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn