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Looks like for quite a few of us this daily Fatigue is a major symptom
and a real problem. I am 54 years old (diagnosed  for over 4 years) and
  have  a serious problem with fatigue to where I end up sleeping for 36
hrs once or twice a month just getting up every 4 hours round the clock
for meds, food, and bathroom breaks. That additional sleep never takes
the fatigue away. Someone mentioned, you can exercise, I would doubt
that they have the type of fatigue  expressed by some of the parkies,
as with this fatigue  some of us don't have any type of energy to
exercise with. I still work full time. Walking any substantial distance
some days can be a chore. I have talked to both my MD and my Neuro MDS
about the fatigue over the last two years and was told--- just
exercise-- I told both that if that was the solution ya think I would
be sitting here complaining about it? Needless to say they then quickly
move on to the next symptom. They have yet to find a real solution for
the fatigue. My yearly checkups do not indicate anything in the body
out of regular medical parameters which would cause this fatigue.  I
thought I had my fatigue solved when I was  diagnosed 2 months ago with
Severe Sleep Apnea and now sleep with the CPAP pump. This has added
about 40%-60% more energy. This energy  I use to it's fullest benefit;
but for some reason I am now slowly losing that benefit as whatever
causes this Fatigue is starting to creep back in to  reclaim that
additional energy that I suddenly was able to get from the CPAP pump .
 From time to time I find that when I really feel fatigued I drink a
regular pop or have a chocolate bar, I receive a short sugar fix burst
of about 30-45 minutes of increased energy but never more than that.
It is suggested by some on this list to cut down the Comtan.  If I
reduce even one Comtan then my sinemet barely lasts three hours and not
the four hours I need between doses. If I cut out my 4 am dose of both
sinemet and Comtan or accidentally sleep thru that dose, then when I
get up I am not mobile for 60-90 minutes at all or worse happens and I
feel really off all day.  I'll settle for the fatigue rather than the
anxiety, aggression, depression, tremoring, and very uncomfortable
feeling of being OFF.

Sorry no solutions, just another voice with the same problem. Do you
ever get the sinking feeling that this disease has many issues that
seem never to get solved


Don  54/4

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