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Hello All, Dear Pat. My wife, Bodil, got her DBS 19th. of feb. this year. Just a little background. We are living in Denmark and her Parkinson started about 25 years ago. 18 years ago she had to say goodbye to work and hello to a weelchair. She had a lot of fatique, stiffness, slowly movements and worst of all some very painfull dystonia which could last up to 6 to 8 hours, and they came nearly every night, if we were lucky only once, but often 2 - 3 times. 8 years ago I was paid from the local authority, so I could stay at home and work as her caregiver, it was a very good solution for us both. The decision operation or not is a hard one, but the harder Mr. Parkinson is the easier is the decision. The day of the operation started at 8 o'clock in the morning with the offer of the day: A free haircut. It was a very long day, I looked at the watches once in a hour, and every time the hands had only moved 5 minutes, but at last she came out, and already at that time I could feel that the tension in her toes were gone. To day we have got a new life, Bodil is walking around, as much as 3 miles a day, it has been hard to get the muscles to work again, but it is getting better every day. She can take our grandchild up and give her a hook. We have again been able to go to wedding and birthdays in the family. There has been a good deal of adjustment, but every time with a better result, still sometimes we think it could be better, I think it is part of human nature if we get 90% better then the 10% after a time tends to be 100% so it is important to remember how things were before the operation a diary is good for that. We have had to face other (luxury)problems, for example I have been alone in the kitchen for many years, and placed the things were I think it should be, but now, where Bodil is taking the washing - up or even making the dinner, everything get new places. We have been happy with the operation every minute since it was done, but the final decision is a personal one, hope this can help you to make the right decision for you. The company who make the device gives a lot of information at: www.medtronic.com Best wishes Bodil and Georg. ----- Original Message ----- From: "Pat Beil" <[log in to unmask]> To: <[log in to unmask]> Sent: Friday, December 20, 2002 3:37 PM Subject: DBS - sources of info? > Hello all. > At the suggestion of my neuro at the Cleve Clinic, I am beginning to > explore Deep Brain Stimulation. Any experiences, information sources, > resources, etc. ? > > Thanks. > > Patrick > > 35/45 > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn