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YOPA is starting a national registry of young-onset patients.  Go to www
yopa.org to register yourself.

Greg

-------Original Message-------

From: Parkinson's Information Exchange Network
Date: Thursday, December 19, 2002 9:29:29 PM
To: [log in to unmask]
Subject: Re: percentage of young onset/lack of database

In a message dated 12/19/2002 8:18:47 PM, [log in to unmask] writes:

<< "although some people think there has been a shift to a younger age
population in pd there is no read evidence to show this >>

It has been noted in a number of posts that there is no national database
for
PD, so I assume you could say there is no "real" evidence to show a n y t h
i n g about the population that has PD. It seems that clinicians ask us to
accept an awful lot based on admittedly limited samples, yet they reject
what
"some people" think due to lack of evidence.

In the age of powerful computers and high-speed internet, isn't someone,
somewhere, able to pull together a national database?

Kathleen

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