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Congrats Tom. I would like to know about such seminars in the future, regardless of who sponsors them. I traveled to Rochester NY for a seminar and was glad I did. If the list sponsor allows it, why not use this forum to keep us abreast of such happenings. Bob ----- Original Message ----- From: "Tom Berdine" <[log in to unmask]> To: <[log in to unmask]> Sent: Sunday, December 29, 2002 11:13 AM Subject: just found this on PANs website :) > In the hands of the young and talented people at the Young Onset > Parkinson’s > Association (YOPA), their first symposium was a stunning success. With > only two > months of planning, the event went off without a hitch. > > Friday morning began a gorgeous Albuquerque day with 700 hot air > balloons beginning > their mass ascension right outside of the hotel, which seemed to set the > tone for the > conference. The symposium began with a bang as the YOPA team was > introduced and > the speakers began. The speakers were: Susan Reese (APDA) who discussed > resources > for young onset patients, Dr. Andrew Singleton (NIH) who discussed the > genetics of PD, > Dr. Marcus Keep (University of New Mexico) who discussed surgical > procedures for PD > with a focus on DBS, myself, and Russ Ahlstrom who is an author and 38 > year diagnosed > PD patient. The presentations were very well put together and seemed to > flow into one > another nicely. Approximately 75 people participated in the conference. > > My own experience at the conference was incredible. I talked about PAN > and our > mission, my own experience with Parkinson’s Disease and the importance > of advocacy. > The message was very well received. Many people came up to me afterwards > and were > very positive and encouraging. Several people told me their stories and > that they were > interested in getting more involved in advocacy. The audience was very > politically savvy > and asked good questions about things like the Parkinson’s Disease > Research Agenda, > stem cells, writing letters to their Members of Congress, etc. > > The following day, the weather cooperated once again, giving beautiful > blue skies for the > 1st Annual YOPA Walk. Prior to the walk, I was able to show the Udall > dinner film and > interact with the attendees. I was even able to sign a few people up to > be on PAN’s > mailing list. I then participated in the 2K walk along with about 30 > members of the PD > community (there was also a 1K walk that a similar number of people > participated in). > > The event was a great success. I was overwhelmed by how supportive and > excited people > were about my job and our mission. It was a remarkable experience, a > real highlight. > > Laura Jane Cohen > Outreach Coordinator > Parkinson’s Action Network > > > > The Young Onset Parkinson's Association is a legal corporation, > incorporated as a not-for-profit in New Mexico and headquartered in > Albuquerque. We are in the middle of applying for our 501C(3) federal > tax exemption status and expect to have it within 2 - 6 months. If this > exemption is not approved, at first, your donation may not be tax exempt > until the time that we are approved federally. > > > > --- > Outgoing mail is certified Virus Free. > Checked by AVG anti-virus system (http://www.grisoft.com). > Version: 6.0.434 / Virus Database: 243 - Release Date: 12/25/2002 > > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn