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You might want to check out www.youngparkinsons.com and www.yopa.org
You'll quickly see that you're not alone.
Stop by the youngparkinson's chat room around 10 PM EST.

Greg


-------Original Message-------

From: Parkinson's Information Exchange Network
Date: Wednesday, January 08, 2003 4:11:12 PM
To: [log in to unmask]
Subject: JUST JOINED

Hello All,
I have recently been diagnosed with "Tremor Dominant PD" after believing
for 3 years that I had an "Atypical Essential Tremor". As it turns out,
all of the things that made my ET atypical are textbook symptoms of
PD....so now I know.
I just turned 44 a week and a half ago, I have a loving and supportive
network of family and friends. A job that I really enjoy, and lots of down
time to garden, cook and write. So PD is the only thing that I have to
complain about. But I figure why bother complaining, because I won't make
it go away, and it will just annoy everyone around me.
I just started Mirapex ten days ago, beginning at 0.125mg three times a
day, and now up to 0.25. So far I have had very little problem with side
effects, just a little queasy every once in a while for a very brief time.
I would be interested in your experience with Mirapex.
I have been seeing an acupunturist for a few months, every 3 weeks or so
(off schedule now because of the holidays), and taking some Chinese Herbs,
which helped a great deal with my tremor initially. I have discontinued the
herbs until I can coordinate with my various practitioners to be sure that
they won't counteract each other, I have an appointment this afternoon to
take care of this. My neuro is a movement disorder specialist at UCLA, and
is very open to "alternative" therapies, one of which is "coenzyme Q10".
CoQ10 has been in clinical trials and is believed to be effective in
slowing down the progression of PD in the brain. Once I get settled in to
my dose of Mirapex I am seriously considering CoQ10, even though it will be
a
considerable ($200 per month or so) expense, as it has yet to be approved by
the FDA as a drug.
Any information or guidance that you can share with me will be greatly
appreciated
John
LA, CA

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