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Keith - My sister is being cared for by Dr. Lewitt and his associate, and was evaluated by Dr. Junn for DBS today. Strictly from the sidelines of her downstate care, but from up close on the caregiver end, I'd give them both good marks. I don't think we told Junn anything he hadn't seen before and he put his finger on a couple of trouble areas right away. I've never met Lewitt, but my sister is a difficult case by all standards, and he's hanging in there with her. Joanne is tentatively approved for the surgery, but Junn wants a three month delay to stabilize her meds and have her get her panic attacks under control. Understandably enough, he doesn't want that to happen while she's under the knife. Three months seems like a long time away, but we'll get her there. Any coping mechanisms the list would like to recommend for panic prone advanced PDer's? And thanks in particular to Charlie Black, who pursued me to my work email with more helpful info for the evaluation interview. First round is on me, Charlie. John in Michigan -----Original Message----- From: Mary Ann Ryan <[log in to unmask]> To: [log in to unmask] <[log in to unmask]> Date: Thursday, January 16, 2003 6:29 PM Subject: Re: New at this >Keith, Beaumont Hospital in Royal Oak does more DBS surgery than any other >hospital in the tri-state area. There are numbers of studies on PD on-going >all of the time in the Movement Disorder Clinic there. Dr. Lewitt is the >person to see. Please call 1-800-633-7377 for his number. I apologize that >I can't find the clinic number - I've been scrambling around looking for it, >but misplaced it somewhere. > >My husband sees Dr. Danny Watson at St. Joseph Mercy Hospital in Pontiac. >Dr. Watson has an MD/Ph.D and is wonderfully methodical in prescribing >Parkinson's meds. He worked with Dr. Lewitt at Wayne State and has >encouraged my husband to participate in a study with Lewitt at Beaumont. >The beauty of being in a study (as many members of this list can attest) is >that even if you get a placebo during the process, you are eligible for the >drug (if it is promising) after the study is completed. > >Good luck and God bless you. >-------- >Mary Ann Ryan (CG Jamie 23/63) > >P.S. My husband's experience at U of M was very disappointing. > >---------------------------------------------------------------------- >To sign-off Parkinsn send a message to: mailto:[log in to unmask] >In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn