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Dear Maggie,
How much Sinemet do you take at and at what dosage?  Maybe we could
all send you "excess" medication as a backup supply to make you feel mor
secure.  David





>From: Maggie Mauney <[log in to unmask]>
>Reply-To: Parkinson's Information Exchange Network
><[log in to unmask]>
>To: [log in to unmask]
>Subject: Re: Help Please with Advocacy!
>Date: Tue, 18 Feb 2003 18:06:51 -0500
>
>I have just lost all of my health benefits from my employer, so I, too,
>am advocating for some type of governmental health care provisions.  I
>was diagnosed with PD last September, tho I've had symptoms for a
>couple of years.  I'm single, and only a 1-income family--and I've just
>been cut back to part-time work at my job as grocery store cashier, due
>to some health-related warnings I've received (too slow at cash
>register; not engaging enough with customers; not able to bag or carry
>heavy groceries, etc.).
>
>I will have no option except to stop taking my PD medication, Sinemet,
>sinceI can't afford to buy it without health care/prescription
>coverage.  I feel the government should make some provision for those
>of us who don't quality for public assistance programs (I am not
>eligible for medicaid and since there are no children in my household,
>don't qualify for any type of assistance).  I'm 52 years old, and it
>will be 13 years before I qualify for Medicare.  What am I to do for
>those next 13 years for health care without some type of government
>assistance?
>
>Maggie Mauney
>
>
>
>On Tuesday, February 18, 2003, at 01:56 PM, Meg Duggan wrote:
>
>>Hello - We would like to print a "form" letter in our newsletter that
>>people
>>can copy or clip out and send to their state and/or federal
>>representatives.
>>We would like to begin to advocate for some type of fall-back major
>>medical
>>coverage for people who have already been dxd with PD.  We are in a
>>farm
>>state and more than one insurer has pulled out of the entire area,
>>leaving
>>long time customers uninsured; many unable to afford to go into the
>>existing
>>state pools.  Can anyone give us some ideas for this letter?  I am not
>>really
>>sure what I am asking for!  Thanks, Meg
>>
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