Dear Arthur,
Hi. I am Paula from PA, 49 yr old and holding, diagnosed 12 years ago,
and had DBS 2 yrs. ago. I find your message so interesting because I have
never been on Requip and you described my current pains perfectly. I made
an appt to have my stimulators checked because all of a sudden I found
myself crawling when no one was around (because the pain that shot down my
leg went from my left buttocks down to the outside of left ankle. That
lasted for about two weeks and now usually when I get tired). I am on
Sinemet 25/100 (1/2 tablet) every 3 hrs., 6 - Permax (1 mg. every three
hours, Elavil (for Pain - 4x daily) and 3 (100 mg Amantadine). This may
confirm that it's not the Requip.
My neurologist keeps telling me to increase the Permax, but not to if I get
hallucinations. I already take Permax every 3 hrs., it's the most expensive
of my drugs,. and I have had hallucinations and vivid dreams lately. What
seems like the most difficult part of this disease is that no two people are
alike and the neurologist says, "You know the drill. Experiment." I try to
learn all I can so I can make wise choices. Good luck to you.
Paula from PA
----- Original Message -----
From: "Arthur Hirsch" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Wednesday, March 05, 2003 12:26 PM
Subject: Requip and pain
> Sorry to have to butt in here with one of the principal reasons for the
> list's existence - comparing our personal experiences with medications -
> because the political context in which we find ourselves is so very
> important to us all also.
>
> I have been on Requip for, I'd guess, four years now. My present dose is
2
> mg, four times daily.
>
> I was just talking with another PWP who offered me a supply of 0.25 mg
> tablets. Her purpose in having a large quantity of this size was that she
> had just titrated off Requip. She had seen me walking in pain several
> weeks back - and the reason that she had titrated off Requip was that she
> had identified the Requip as the source of her pain. Suddenly the thought
> struck us that Requip may be my problem also.
>
> The pain that I have can be anywhere in my body - it moves from place to
> place - sometimes in my shoulders but most often in my hips or my left
> leg. When it is in my hips, I find standing for any time to be
> difficult. When it is in my left leg, walking is extremely difficult: I
> fear putting weight on my leg, lest the pain become unbearable, he leg
> buckle, and I fall. And when the pain disappears, as betimes it does, I
> feel relieved to have only the Parkinson symptoms.
>
> We know of yet another person who has had the experience of pain that
> dissipated with the discontinuance of Requip. At least initially, her
> Movement Disorder Specialist knew of no connection between the pain and
> the medication.
>
> Has anyone else on the list had a similar experience? Someone else who
> takes Requip and has pain? Someone who had pain until he or she
> discontinued Requip? This appears to be an excellent topic on which to
> exchange information.
>
> Art
>
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