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Dear All, I have, over the years, been VERY concerned about the problems which PWP face when they are hospitalised. I was asked to talk about the minefields facing PWP when they are hospitalised. I eventually made a docu - drama video about this topic (I am told it is very moving and now used as an educational video for doctors in at least one medical school in Oz). It is called " Lost Voices. " I was inspired by and used some of the information provided by Mitchell Mills (are you out there Mitch?) and our very own dietitian Kathrynne Holden. If you want more info about it, please look up the PWA website under "Publications" at www.quartec.com.au/parkinsons Joy Graham >The document that I have in front of me is copyright 1995, so there may be >a newer issue. It is entitled "Hospitalization of a Parkinson Patient, APDA >Educational Supplement No. 5." It addresses just the issues that are being >raised in this thread. It, or something similar to it, ought to be >required reading by the institutional staff whether one be going into a >hospital, a nursing home, or another institution. Possibly it should also >be read by your physician, if (s)he is not also your neurologist. It is >available at no charge from APDA. Chances are good that other Parkinson >organizations in the U.S. and around the world have similar documents. > >If this document is something that the institution staff should have if and >when you check in, it only stands to reason that you should have a copy of >it to give them. > >How about it? Do you have a copy that you can find quickly should the >occasion arise? > >Art > >At 08:56 AM 3/10/2003 -0500, Bill Lawless wrote: >>Just had an experience I would like to share. I was in a local hospital >>for three days. The reason was to correct some urinary problems. Like most >>of you I have worked out a Parkinson's medicine schedule that I follow >>and gets the results I want. The problem arises when the hospital rules >>forbid self medication and the hospital orders don't include your >>medications for Parkinson's and your schedule. If you can't get the staff >>to change the orders you could be in short term trouble. >> >>Make sure that your admitting doctor has your meds by name, dose and TIME. >>Or at least during pre-admitting or actual admitting you specify the >>information and check it. So that the nursing staff has a heads up. After >>an operation you are in no condition to negotiate for what you need. For >>my part I always carry spare meds, but that is a last resort and you might >>not be able to access them. >> >>Regards, Bill Lawless >>[Ergo hoc, ergo propter hoc!] a logical fallacy. > >---------------------------------------------------------------------- >To sign-off Parkinsn send a message to: mailto:[log in to unmask] >In the body of the message put: signoff parkinsn Bob & Joy Graham Ph & Fax (08) 9430 4730 ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn