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Hi Rayilyn, I feel that your condition is very similar to mine.I've tried several PD meds but so far none seem to help much except for giving me side effects.AS a result my doctor inreases the dose of Madopar which is the same as Sinemet.I've taken the increased dose together with Comtan and my tremors and dystonia have gone worse.I'm convinced that the culprit is the Madopar(Sinemet)after you and Erwin have the same experience.I'm seriously considering stopping Madopar but my neurologist says once you have started taking you will have to take it all your life.I feel miserable and worn out by this suffering and lousy quality of life.I'm still going to try the Botox injection although you said it did not help.At this moment i'm desperate to try anything that is reasonably safe as my limp is also getting worse.Sorry to sound so depressing but thats how I feel.Thanks for your feedback. Sharon >From: Rayilyn Brown <[log in to unmask]> >Reply-To: Parkinson's Information Exchange Network ><[log in to unmask]> >To: [log in to unmask] >Subject: Re: Tricky PD Meds/Sharon >Date: Sun, 9 Mar 2003 17:09:44 EST > >Hi, Sharon,, > >my tremors and dystonia were never helped by PD meds' n fact after a year >on >Sinemet (I was "ON" for a couple of hours), my foot/toes dystonia got >worse. >so I don't take PD meds now - my 7th year. Botox injections in my leg >didn't >help either. > >I have the awful stiffness now and use an electric wheelchaiir part-time - >exercise in my exercise-therapy pool and am hoping to drag ny body back to >treadmill again. A year ago I could do a mile on it. I am just "OFF" all >the >time, but meds were woefully inadequate. My first neuro told me PD meds >were >"tricky" - now I know what he meant. > >It seems I am in a minority - most people on the List benefit greatly from >the meds and yes, I have a F-DOPA PET scan from UCLA that confirms >diagnosis >of idiopathic PD by 5 neuros. > >Hope you have better luck than I have, but if you don't, you are not alone. > >Rayilyn - 60/67 > >---------------------------------------------------------------------- >To sign-off Parkinsn send a message to: >mailto:[log in to unmask] >In the body of the message put: signoff parkinsn _________________________________________________________________ Download Norah Jones, Eminem and more! http://www.msn.com.sg/ringtones/ ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn