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Hi Sharon, I was given a time release Carbidopa/Ldopa ER50/200 that had no effect on my PD symptoms for 3 years. Neither Requip nor Comitan had any effect either. Eldepryl dropped my blood pressure to very low levels, and I stopped taking after 2 weeks. HOWEVER, when I was given the Carbidopa/Levo in a non-time release 25/100 2 tabs 5 times a day, then I experienced significant relief for several hours in the morning. I regained balance and could walk easily! I also feel a benefit from taking 1 tab of amantadine 100mg in the morning. I have to take one ambien 10mg to sleep soundly for six hours a night. Don't give up hope or trying indivdual variations. Good luck, David >From: Sharon Lee <[log in to unmask]> >Reply-To: Parkinson's Information Exchange Network ><[log in to unmask]> >To: [log in to unmask] >Subject: Re: Tricky PD Meds/Sharon >Date: Mon, 10 Mar 2003 17:29:24 +0800 > >Hi Rayilyn, > >I feel that your condition is very similar to mine.I've tried several PD >meds but so far none seem to help much except for giving me side effects.AS >a result my doctor inreases the dose of Madopar which is the same as >Sinemet.I've taken the increased dose together with Comtan and my tremors >and dystonia have gone worse.I'm convinced that the culprit is the >Madopar(Sinemet)after you and Erwin have the same experience.I'm seriously >considering stopping Madopar but my neurologist says once you have started >taking you will have to take it all your life.I feel miserable and worn out >by this suffering and lousy quality of life.I'm still going to try the >Botox >injection although you said it did not help.At this moment i'm desperate to >try anything that is reasonably safe as my limp is also getting worse.Sorry >to sound so depressing but thats how I feel.Thanks for your feedback. > >Sharon > > >>From: Rayilyn Brown <[log in to unmask]> >>Reply-To: Parkinson's Information Exchange Network >><[log in to unmask]> >>To: [log in to unmask] >>Subject: Re: Tricky PD Meds/Sharon >>Date: Sun, 9 Mar 2003 17:09:44 EST >> >>Hi, Sharon,, >> >>my tremors and dystonia were never helped by PD meds' n fact after a year >>on >>Sinemet (I was "ON" for a couple of hours), my foot/toes dystonia got >>worse. >>so I don't take PD meds now - my 7th year. Botox injections in my leg >>didn't >>help either. >> >>I have the awful stiffness now and use an electric wheelchaiir part-time - >>exercise in my exercise-therapy pool and am hoping to drag ny body back to >>treadmill again. A year ago I could do a mile on it. I am just "OFF" all >>the >>time, but meds were woefully inadequate. My first neuro told me PD meds >>were >>"tricky" - now I know what he meant. >> >>It seems I am in a minority - most people on the List benefit greatly >>from >>the meds and yes, I have a F-DOPA PET scan from UCLA that confirms >>diagnosis >>of idiopathic PD by 5 neuros. >> >>Hope you have better luck than I have, but if you don't, you are not >>alone. >> >>Rayilyn - 60/67 >> >>---------------------------------------------------------------------- >>To sign-off Parkinsn send a message to: >>mailto:[log in to unmask] >>In the body of the message put: signoff parkinsn > > >_________________________________________________________________ >Download Norah Jones, Eminem and more! http://www.msn.com.sg/ringtones/ > >---------------------------------------------------------------------- >To sign-off Parkinsn send a message to: >mailto:[log in to unmask] >In the body of the message put: signoff parkinsn _________________________________________________________________ Help STOP SPAM with the new MSN 8 and get 2 months FREE* http://join.msn.com/?page=features/junkmail ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn