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Hello Rayilyn. In reading your post I think I'm walking in your footsteps. I am three weeks into trying Sinemet for the second time. I don't get any noticeable help from it. As a matter of fact I have proven to myself that iy causes dystonia. I have also started on ReQuip and am not too sure about it. If anyone has anything positive to say about it please speak up. Rayilyn, I enjoy your posts. Keep on keeping on. Best wishes. Ervin McCarthy ----- Original Message ----- From: "Rayilyn Brown" <[log in to unmask]> To: <[log in to unmask]> Sent: Sunday, March 09, 2003 2:09 PM Subject: Re: Tricky PD Meds/Sharon > Hi, Sharon,, > > my tremors and dystonia were never helped by PD meds' n fact after a year on > Sinemet (I was "ON" for a couple of hours), my foot/toes dystonia got worse. > so I don't take PD meds now - my 7th year. Botox injections in my leg didn't > help either. > > I have the awful stiffness now and use an electric wheelchaiir part-time - > exercise in my exercise-therapy pool and am hoping to drag ny body back to > treadmill again. A year ago I could do a mile on it. I am just "OFF" all the > time, but meds were woefully inadequate. My first neuro told me PD meds were > "tricky" - now I know what he meant. > > It seems I am in a minority - most people on the List benefit greatly from > the meds and yes, I have a F-DOPA PET scan from UCLA that confirms diagnosis > of idiopathic PD by 5 neuros. > > Hope you have better luck than I have, but if you don't, you are not alone. > > Rayilyn - 60/67 > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn