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HI GREG AND PIENers, I sometimes have diphasic dyskinesia.,] even wqhen functioning well. Ida Kamphuis used to write the listserve about this. Phase 1 is a sinuous excessive motion of my spine, and concomitant lessening of my sense of balance. This occurs during a period of time, of up to a half-hour, if my medications have reacted too strongly, and usually is a mid-dose changeover from more normal movement. Michael J. Fox has similar sinuous movement going on , but very frequently. his lasts for a very long time. This dyskinesia can also occur if my diet is too sugary, or too carbohydrate-rich. A second Phase is brief and intense, lasting about two to five minutes. This dyskinesia includes rapid bouncing of both arms, and precedes a precipitous crash into paralysis and stiffness characteristic of a very deep "off-state." This dyskinesia always comes on very suddenly, ends in the blink of an eye, and is always an end-of-dose phenomenon. I am rendered motionless and in pain once the dyskinesia stops/. Ivan 53/39/35 On Tue, 11 Mar 2003 21:04:29 -0500 Greg Sterling <[log in to unmask]> writes: > Sinemet could also make it better. In my case, and many others, I > have > wearing off" dystonia. When my sinemet runs low, I get the > dystonia. > Without the sinemet ii'd be a human pretzel. > > Greg > > -------Original Message------- > > From: Parkinson's Information Exchange Network > Date: Tuesday, March 11, 2003 4:10:06 PM > To: [log in to unmask] > Subject: dystonia > > Nigel although some dystonias are medicine related some cases are > definitely > a symptom of PD particularly in Young Onset PD as I have. I do not > take > medication and have extremely painful dystonia in both legs. My > movement > disorder specialist says there is not much to do for it as the > sinemet can > make it worse, in the meantime I take muscle relaxers to give me > some relief > > > Sherry > 48/38 > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > . > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn