Hi ,
I have been reading the recent mailings concerning PD meds', and I agree fully with the comments that it is sometimes difficult to distinguish what is a symptom of PD and what is a side effect of medication.
However, it is my experience that dystonia is most definitely a side effect and not a symptom. I have been taking Madopar for 14 years now, and have tried a variety of supplementary meds' ie Pergolide, Bromocriptine, Comtan and Cabaser. The madopar is the root cause of dystonia, which can be eased or worsened by the supplementary meds. In my case , about five years ago when I was taking Pergolide as the supplement, the dystonia got so bad that I was spending more and more time each day in considerable discomfort, waiting for the dystonia to wear off.
I asked my Neuro' if it would be ok to come off the Pergolide and try a new supplement which I had read about called Cabaser, he agreed to my request and within two days of starting cabaser the dystonia had completely disappeared, it was more than I had dared to hope for, and it lasted up until a few weeks ago when the dystonia began to re-appear.The dystonia is definitely dosage related, if for any reason I miss a dose of Madopar I get no dystonia, likewise I get no dystonia overnight, it only restarts after I take my first Meds of the day.
Regards,
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Nigel age 48, diagnosed at 33.
