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I was flown to the NIH for the study a couple of weeks ago. Here's what I suggest to make it as useful as possible: 1. Fill out the forms as completely as you can before hand and keep a copy. It's a fair amount of information and you'll be surprised at what you think of later. You'll have a record and know what extra information to send in. 2. The organization is top notch, I was well impressed. By all means have the travel organizer do his thing for you, that part couldn't have gone any better. 3. I spent the night before just jotting down notes on family history, environmental points (where we lived, who was born where, etc. It turned out to be of great interest that my father spent time in Guam during WWII. Who would have known?) that might have impact (toxic exposure at work for the parents, exposure to pesticides in the surrounding country, any of that sort of thing.) and left that with the doc. She was glad to have the information. 4. Pump your elders for information about your ancestors. Family stories of tics, palsy, etc. Good luck and safe travel. John in Flint, MI -----Original Message----- From: Charlotte A Mancuso <[log in to unmask]> To: [log in to unmask] <[log in to unmask]> Date: Friday, March 14, 2003 4:00 PM Subject: I'm also in this study--Re: PD, Genetics, Washington >Hello, >I too am in this study; I will fly out in May sometime, and I'm very excited about it. I have always wanted to participate in a genetics study for PD, but although I have a strong family history of PD, I am the only living family member with PD, and these studies normally require a sibling or other family member diagnosed with PD. >I will be anxious to read all about your experience with the study. >Good luck, >Charlotte Mancuso > [log in to unmask] wrote:Hi All - > >The National Institutes of Health has invited me to participate in a genetic >study which is aimed at Parkinson's research. In fact I am flying to >Washington on Sunday and will return on Tuesday. > >They have planned a battery of tests including neuro psych, movement exams, >blood work, and the like. > >I'll let you know about it once I'm back at home. > >Jim > >---------------------------------------------------------------------- >To sign-off Parkinsn send a message to: mailto:[log in to unmask] > >---------------------------------------------------------------------- >To sign-off Parkinsn send a message to: mailto:[log in to unmask] >In the body of the message put: signoff parkinsn >In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn