Scott, how I can so relate to your feelings. each day I wonder how affected
my activities will be because of PD. I was diagnosed this year and the
diseases has progressed very quickly. As a matter of fact, I have totally
lost my ability to type with my right hand so I now rely on the computer to
do the typing for me.the software is not perfect but it works. They say
that the younger you are the quicker the disease progresses. I'm not
comforted in knowing that and struggle to deal with the diagnosis. I am
forty-eight years old and Parkinson's disease has affected my entire life.
I have had to make adjustments in all aspects of my life and I am dealing
with the depression that follows as a result of limited capabilities. It
is very difficult to get a loved one to understand what impact this disease
has on one's life. But, to answer your question, yes I have many ups and
downs physically and psychologically. The medication helps but the disease
rules.
Victor
Bob Allison
<[log in to unmask]> To: [log in to unmask]
Sent by: cc:
"Parkinson's Subject: Re: disability
Information Exchange
Network"
<[log in to unmask]
TORONTO.CA>
03/27/2003 09:04 PM
Please respond to
"Parkinson's
Information Exchange
Network"
Scott I have only been dx'd a year and i have my good and bad days
already.
I can only imagine how worse yours are than mine--but definitely dont make
any permanent decisions on those bad days. I am not on meds yet so I cant
offer any intelligent advice there but perhaps it is time to try "more" or
a
different mix. Bob
----- Original Message -----
From: "scott burnett" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Thursday, March 27, 2003 8:58 PM
Subject: disability
> Once again as the school year draws to an end, I run out of energy and
> start thinking that maybe now is the time to go ahead with a State
> Teachers Retirement System disability application. Most days at work
> are on and off affairs, with the emphasis on the off. Lots of shaking,
> stiff muscles in my neck and back and especially slooooow movement.
> Sometimes I can't even double click the mouse to activate a program, so
> I have to ask my students to do it for me. Yesterday was really bad
> and I was very much ready to do it. Today I felt pretty good so I was
> feeling guilty about even considering it. I guess the reason I'm
> seriously considering applying is that I find that I spend all my
> energy at school and by the time I get hope at 5 or so I've got nothing
> left for my own kids and family. Many is the night that Daddy is in
> his bedroom, and mom is working on homework with the kids, telling them
> to be quiet because Dad doesn't feel well. I'm also thinking that if I
> wasn't working I could put off the time when I reach the toxic level of
> my sinemet. Currently I'm taking five 25/100's per day. I just had
> to increase the dosage by taking a pill at 4 AM so that I can teach
> until my 7 AM and 11AM dosage have kicked in. Prior to taking the 4AM
> dose I was off until about 2 PM daily.
>
> Anyway, my 13 year old is kicking me off the computer so away I go.
> I'm 45 years old and have been diagnosed for 5 or 6 years. Does
> anybody else have these same back and forth feelings?
>
> Scott
>
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