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Hello Victor,

I'm 54 this July and was diagnosed 6th April 1993. I probably had the  first
symptoms mid 1991; which I think was induced by the anti-depressant I had
taken, July '88 thru Jan '91.

I decided to take no meds and to continue working for a as long as
possible - I was a Consultant/Project MGr with the UK affiliate of GE (USA)
Information Services. The first difficulty was writing, which I dealt with
by making brief bullet notes at meetings and relying on my memory to flesh
them out when I got back to the office and typed up minutes, action plans
etc; or, sometimes I tactfully delegated the task to a member of the team. I
managed quite well thru 93,94 &95 but early in 96 I began to fall and had
difficulty walking and even though my colleagues and clients (Banks, Brokers
and Financial Co.s) were all understanding and supportive, the Company
Doctor recommended that I take early retirement. So in August 96 I stopped
work with GE, 3mths short of 26yrs Service. I effectively finished working
Feb 97 because we agreed a gradual handover and I provided support from home
using email etc. At that time I still was not taking any Meds. My mobility
became worse; I needed help with bathing, dressing, cutting food; writing
ceased; I avoided eating and drinking for fear of not getting to the toilet
in time; I would lie in bed until 1pm. I still refused to take Meds.
My posture was Ape like and my face lacked expression.

In August 97 I discovered the Alexander Technique and very slowly began what
I regard as a form of recovery and remission. I believe my positive attitude
and determination to defeat PD has been key in achieving this; together with
seeking Complimentary/Alternative therapies rather than going down the
standard route of L-dopa etc. 1998 was a very bad year and in the Fall my
Alexander Teacher told me about someone who had regained virtually all motor
functions by taking Bromocriptine (an agonist). In the December I contacted
my GP, who consulted with my Neuro and in February 99 I started taking
Pergolide(Permax) as a mono therapy. By June, on 3 x 300mcg's /day, I was
walking fully upright, bathing and dressing myself; and not only cutting my
food and feeding myself but preparing meals as well- I enjoy cooking!

On July 2nd 1999, I drove my car for the first time in 4yrs and went to
Mass - I cried all the way there and back. July thru November I took my dog
for 2mile walks each day. But suddenly in the December my mobility became
difficult once more and still is today. I think this is due to several
factors: Emotional stress with my marriage, anxiety, lack of proper sleep
and swollen legs and ankles. I'm sure the latter is due to the Neuro
tripling my daily dose of Pergolide.

In spite of difficulty with walking I still pretty much take care of my
needs, I cook, I drive, I repair PC's, I've landscaped my garden, I've run a
power cable from the house to my workshop (150ft) with a junction partway to
provide power for lighting and pond pump  and I've restored a couple of
antiques. I've also resurrected an interest in photography and stamp
collecting. All of which require fine motor skills.

In addition to the Alexander Technique I see a Reflexologist every 2wks and
a Homeopath every 6 weeks. This approach has and is working for me; and it
allows me to keep the meds at the smallest dose possible. The next part of
my plan is review my diet to ensure I'm eating the right foods; to this end
I've just bought a book co-authored by GP and Nutritionist husband and wife
team, specialising in PD. I can honestly say I've achieved this on my own
because my wife has shown no interest and remains cynical and sceptical.
What's the worst thing that's happened to me because of PD? The destruction
of my marriage because my wife can not accept the changed physical me. I
heard someone say (in a movie), "Love enters through the eyes and leaves
through the eyes", which is to say it is only on a physical level and not
deep and meaningful.

I believe that given rest, the mind and spirit can heal the body. The
dopamine producing part of the brain is dying and not dead; and I am seeking
ways to halt and reverse this through complimentary paths because I think
most of the existing meds kill off  what's left, very quickly.

Regards,

Marco

(London, England)

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