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Joan Snyder, Would you either post again, the letter you wrote to the Parkinsn Listserve, that you refer to below, or send it to [log in to unmask] Maria James, 41, diagnosed at 32, is very active in her church and she will be on the radio show this Friday, World Parkinson's Disease Day (press release copied below). I would like her to see your letter. Her church has been very supportive and has printed information about workshops and the radio show in their bulletin. We would like to put your letter on our web site along with the information we have posted about the Pipeline Project and so forth. Lonnie Ali did an interview for us today for the show and we are trying to coordinate with former Attorney General Janet Reno, who has also agreed. Mary Baker, the president of the European Parkinson's Disease Association has also agreed to a telephone interview. We are trying to coordinate times for that interview. We have a call and e-mail request in to Michael J. Fox. Bill Harrington, the poet who collaborated on "With Parkinson's, Don't Order the Soup," sent the release to his town newspaper, and they printed an article about the radio program. Again, the best person to contact would be the Medical/Health Editor. Please see press release copied below. Thank you, Alison Landes In a message dated 4/8/03 4:02:12 PM Eastern Daylight Time, [log in to unmask] writes: > Subj:update on:Stem Cells and Cloning: The Science Behind the Rhetoric > Date:4/8/03 4:02:12 PM Eastern Daylight Time > From:<A HREF="mailto:[log in to unmask]">[log in to unmask]</A> > Reply-to:<A HREF="mailto:[log in to unmask]">[log in to unmask]</A> > To:<A HREF="mailto:[log in to unmask]">[log in to unmask]</A> > Sent from the Internet > > > > just wanted let you all know that today i recieved a phone call from the > editor of The Catholic Post, which is the newspaper for the entire > Catholic Dioscese of Peoria. the gentleman there said that he was > sending the article forward up the chain of command to our monsigniour, > then to our bishop and finally, if it flies there, he will send it on to > the US Conference of Catholic Bishops. i would like to thank again, Dr. > Barglow and Dr. Etzold and Dr. Rajaraman, without whom i couldn't have > written the piece. please continue to keep this project in your thoughts > and prayers. j > > -- > Joan E. Blessington Snyder 50/11 > http://www.pwnkle.com/jes/jes_web/index.htm > <[log in to unmask]> > "Hang tough...........no way through it but to do it." > Chris-in-the-Morning (Northern Exposure) > TAKE CHARGE! CURE PARKINSON'S, INC. 1489 W. Palmetto Park Rd. Suite 442, Boca Raton, FL 33486 T-561.620.1970 F-561.395.0615 [log in to unmask] www.cureparkinsons.org FOR IMMEDIATE RELEASE Media Contacts: Alison Landes 561.395.8424 On April 11, 2003, World Parkinson's Disease Day, grass roots charity to be featured on S.FL station WNN 1470 AM "Good Work" Radio Show, accessible world-wide via the Internet WHO: Take Charge! Cure Parkinson's, Inc. (TCCP), founder, Alison Landes, will be joined by Morton Kondracke, author of Saving Milly: Love, Politics and Parkinson's Disease, Diane Murphy PhD, Program Director, Neurodegeneration Group of the National Institute of Neurological Diseases and Stroke (NINDS), Lonnie Ali, Muhammad Ali's wife, and Tom Berdine, president of Young Onset Parkinson's Association, on South Florida radio program, "Good Work". The program is hosted by non-profit fundraising consultants, Joy Siegel and Cliff Weidberg, and moderated by radio personality, Ron Hersey. WHAT: TCCP will share information about available resources and how people can support a ground-swell of grass roots efforts with national impact. For additional information log on to: www.cureparkinsons.org . WHEN: Good Work airs Friday April 11, 2003, 2:30 p.m. - 3:00 p.m., the sixth annual World Parkinson's Disease Day. WHERE: 1470 AM radio in South Florida and world-wide via the Internet at www.WNNHealthTalkRadio.com . Click on listen-live. HIGHLIGHTS: Morton Kondracke, executive editor of Roll Call newspaper, co-host of Fox TV- The Beltway Boys, board member of Michael J. Fox Foundation and Parkinson Action Network will share insights and perspectives on Parkinson's. TCCP founder, Alison Landes, whose sister, Fran Landes, was diagnosed in 1998 in her mid-forties, will be in the studio along with Parkinson's patient, Maria James, a 41-year old mother of three, diagnosed at 32, and board member, Barbara Taege. Landes, Taege, and James will speak about TCCP's local, national and international outreach that is increasing awareness of Parkinson's disease, raising funds for research to find a cure and improving quality of life in the community. Tune-in, hear about scientific developments, the Parkinson's Bracelet of Hope, the Poetic Medicine Workshop, the traveling art-poetry exhibit, "With Parkinson's, Don't Order the Soup," to be hosted in cities nationwide by Parkinson's advocates in partnership with support groups, hospitals, national, regional and local sponsors. Hear how you can become a Friend of Take Charge! Cure Parkinson's - take charge, take action - tune in to 1470 AM radio in South Florida or visit www.RealTalkRadio.com on Friday April 11 at 2:30 to 3:00 p.m. - end - Alison Landes Founder/ Chair Take Charge! Cure Parkinson's, Inc. 1489 W. Palmetto Park Road Suite 442 Boca Raton, Florida 33486 Tel: 561.620.1970 Fax: 561.395.8424 E-Mail: [log in to unmask] Web site: www.cureparkinsons.org ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn