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hi all alison wrote, in whole: >Hi Janet, >Glad to see that on-line communications is working and supportive of efforts >to have grassroots voices heard. Several people from Take Charge! Cure >Parkinson's (TCCP) had the opportunity this past month to meet meet with Tom >Berdine, president of Young Onset Parkinson's Association at a meeting we >hosted in Boca Raton. > >Paula Wittekind, also invited, joined us for a 3-day marathon session, the >end of which resulted in our inviting YOPA to partner with us on our project, >"With Parkinson's, Don't Order the Soup," several years in the making. The >details of what will be a traveling art-poetry exhibit, co-created by two >people with Parkinson's, Bill Harrington, poet, 46, diagnosed at 29, and >Lillian Dyck, artist, 68, diagnosed at 49, can be found on our site at >www.cureparkinsons.org. > >We're delighted to be working with Tom Berdine and YOPA. He will be joining >us as a special guest via telephone interview tomorrow on a radio program >airing live from South Florida on 1470 AM radio and accessible world-wide via >the Internet, Wednesday April 16, 10:30 a.m. to 11:00 a.m. EST (Florida, USA) >time, at www.WNNHealthTalkRadio.com. The show is called Good Work and we've >arranged for a special part 2 of the program on Wednesday as the show usually > airs on Fridays. > >Mayor Steve Abrams of Boca Raton will be with us, live, in the studio, along >with Joel Wilson, age 55, diagnosed at 49. Joel, a successful business man, >had to scale back his businesses and basically retire from the stressful and >demanding schedule due to his Parkinson's symptoms. > >Other guests interviewed via telephone include former Attorney General Janet >Reno, Dr. Diane Murphy, the director of Neurodegenerative Cluster at NINDS, >Bill Harrington, the talented poet, whom many of you know as >[log in to unmask] (bill harrington), myself, and of course the hosts, >Joy Siegel, Cliff Weidberg and Ron Hersey. > >I hope many of you will join us tomorrow morning to hear about the launch of >two national and international events each of which welcomes your >participation. First, is the exciting national touring art-poetry exhibit, >"With Parkinson's, Don't Order the Soup," and second, is Take Charge with >Tulips ~ Plant a Garden of Hope. Details for both are on our site. We will >be launching this event with Mayor Steve Abrams, in the studio, tomorrow. >Tune in for details about how your city can participate. > >Sincerely, >Alison Landes >Founder/ Chair >Take Charge! Cure Parkinson's, Inc. >1489 W. Palmetto Park Road Suite 442 >Boca Raton, Florida 33486 >Tel: 561.620.1970 Fax: 561.395.8424 >E-Mail: [log in to unmask] >Web site: www.cureparkinsons.org alison it's great to hear about your efforts on behalf of all of us! soup and tulips sound like a grand combination to me. and it's good to hear that a former pienet listmember, bill harrington, is managing to stay out of trouble! i wish you all the best with your broadcasts; unfortunately my antique 486 pc won't co-operate so i may have to rely on reports by others ( ... and maybe transcripts? ...) yrs in parkiness janet janet paterson: an akinetic rigid subtype, albeit primarily perky, parky pd: 56-41-37 cd: 56-44-43 tel: 613-256-8340 email: [log in to unmask] my newsletter: http://groups.yahoo.com/group/newvoicenews/ my website: http://www.geocities.com/janet313/ ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn